I hope you don’t mind if I raise a query regarding ears and VM.
As already posted, my journey started last Nov with a bad bout of vestibular neuritis. When I was still feeling dizzy several weeks later, my doctor referred me to an ENT consultant. He did a hearing test (normal), Dix Hallpike test to check for BPPV (normal) and could only attribute my ongoing balance problem back then as ‘Unilateral Vestibular Hypofunction’ which I understood to be some form of damage to the one ear that had started this chain of events. He was the one who ordered an MRI scan (normal) and told me to carry on as best as I could because this would help with the compensation process.
Fast forward to Aug this year and I then saw an audiologist as I was still 24/7 dizzy with recurrent vertigo. Based upon the caloric testing I had, both ears produced abnormally high percentage responses. From this he could rule out that I had no inner ear damage and also ruled out Meniere’s disease. The Dix Hallpike test was conducted again and proved negative. Therefore, the audiologist concluded that although not strictly diagnostic, such abnormally high responses are usually consistent with vestibular migraine - hence my diagnosis. My appointment ran over time so I wasn’t able to ask anything further. It was a private appointment that I saved hard for so I cannot afford to go back for a second visit any time soon.
However, my question revolves around the issue of just what exactly an ‘abnormally high response’ refers to (if you are being told your ears are technically fine) and whether anyone else has experienced similar abnormally high responses if they had caloric testing? To add to the confusion, I continue to have very high frequency, permanent tinnitus (the sound runs across both ears) which momentarily cuts out from time to time. Additionally, on several occasions I have had a sudden drop in sound from either ear (a bit like a pressure sensation) that lasts anywhere from 5-10 seconds that scares me half to death because I don’t know what is going on. It sometimes sounds like the whole environment I’m in changes momentarily but when I ask others if they have experienced it, it’s always a negative response. I don’t remember having these things before I was ill last November but when they happen, and they happen often, I get extremely anxious.
Any info (no matter how big or small) would be appreciated.