I’ve joined this forum to try and get some advice on a vertigo condition I’ve been suffering from for around 7 years now. I’ve been down all the NHS routes, MRI scans, consultant referrals and balance clinics but everything came back clear. It seems to come and go and I’m not sure what the triggers are? My symptoms are; unsteady on my feet, feeling light headed and like I’m on travellator when I walk, feeling of swaying back and forth when I’m standing still, nausea, headaches, sensation changes, tinnitus, fatigue, neck ache. Things don’t particularly spin for me but I do feel spaced out and it affects my concentration and focus and spatial awareness ( I sometimes move more towards my left side). My symptoms can last for weeks or months and can vary in severity on different days during that time, so I’m not sure if there’s something that’s suddenly making it worse? It doesn’t really affect me when I lay down or sleep but much more so when I up and moving about or sometimes when sitting and working, e.g.at my computer. At the time of writing this, I’ve been suffering for a few weeks now, today being a particularly nauseous and unsteady day.
I found this site through my wife’s work colleague who went down a similar road for years and was finally diagnosed by Dr Surenthiran with Vestibular Migraine. I’m currently waiting to speak to my GP to try and get another balance clinic referral as my last one is no longer open due to my symptoms going away (but not going altogether) No doubt I’ll go back down the same road to try and get a diagnosis via the NHS.
Medication I’ve tried so far hasn’t worked but it was mainly what I was prescribed at the very start when the GP thought it was Labyrinthitis. One neuro consultant also suggested a small dose of anti-depressants to help relax my neck muscles but I didn’t really want to start taking any kind of anti-depressants. I think acupuncture has helped in the past and also neck massage, although I had a neck massage last night and I feel terrible today. I have another acupuncture session booked so I’m hoping it will alleviate my symptoms… I often reach to massage the top of my neck as I feel this is where the problem is which is why I’ve been focusing on my neck.
It affects me so much on some days at home and also at work and is really starting to affect my mental health. I know that there are so many variations of what I’m suffering from but I’m just desperately trying to get a diagnosis for what I have and how best to treat/ manage it.
Any advice from any fellow sufferers about who best to see or suggested effective therapies would be greatly appreciated. I’m a very active, outgoing, positive person and I’m not going to let it run my life but some days feel exhausting and depressing.