I am not a medic, must make that clear. I’m just a person who has had MAV in several of its various forms over 15 years, and still has it. I’ve researched and read and researched and read, worn out a computer or three in the process, endlessly curious about this weird phenomenon that is MAV and here something is not ringing true so pls bear with me a little longer or I may not sleep tonight at all, wondering. Mind if I ask a couple more questions. Presumably you have at some time had migraine headaches or similar. Yes? it is possible to exp. abdominal migraine, particularly I believe in childhood. Can you describe yr dizziness and/or vertigo a bit pls. That’s what is seeming peculiar to me, you don’t mention being dizzy, light-headed, brain fog or anything of that sort which is generally the most commonly shared MAV symptom. Now MAV morphs constantly. Symptoms just keep changing. You can tick these 5 boxes this week, and 10, 7 of which are different, the next. Then, just to complicate the issue, individuals do exp. wide variations in symptoms however … some sort of dizziness seems always to be involved and …
Ear pressure/fullness is common MAV symptom. Tinnitus is another. Personally I have never, yet, exp. ear pain (but you have a peripheral vestibular disorder, could explain). Nor fatigue. Nausea and vomiting in my MAV occurs as a direct result of the vertigo, photophobia or motion sickness, all of which come from the MAV. Do have a good look at the MAV symptom list on the Welcome section to see how yours compare.
There’s no such thing as a definite MAV diagnosis. No conclusive blood test. It’s a diagnosis of exclusion. Lots of people get improvement from following the elimination diet, caffeine seems the worse culprit for many. The jury is still out on VRT. There is a strong concensus of opinion that unstable MAV doesn’t respond well to VRT. I assume you are doing it for the peripheral vestibular disorder (which could be the cause of your MAV symptoms) and it is considered very useful for that. Your physio seems pretty clued up. Where I am in UK they have no balance/VRT training at all. By nature they are very hands-on so she may well be way ahead of all those specialists by being right. MAV is nothing if not interesting.