I don’t want to take this thread off topic. It’s a little learning curve for me, how to navigate this website.
Lots of questions! I’ve seen folks here mention diarrhea, IBS, cognitive. I have that but never connected any of that to the migraine variant. Nor have my doctors. Also the muscle weakness and in-coordination (a large part of my picture- two sprained ankles, one sprained wrist, about 5 fractured toes, cuts, bruises, all in the past 4 years alone). I’ve always known that exposure to perfumes, glues, paints, any kind of fumes sets off muscle weakness and in-coordination. But never associated that with migraine. And none of my local doctors have either- including Neuro at local hospital. She acts like it’s some kind of psychiatric issue. It took the Boston ear doctor to make the migraine diagnosis. And that diagnosis until recently was ignored and probably discounted by my local doctors.
When I developed burning in my fingertips and toes it was quite clear there was an association with gluten consumption: in my case a very direct cause and effect. However, now I’m well off gluten and have developed new unusual numbness. A fluttering numb feeling, travels around my body. Accompanied by weakness. Again, these symptoms are met with skepticism from local docs. I’m woozy much of the time, I have outrageous flashing lights in my vision, even with my eyes closed! It can keep me from sleep at night. My home, an apt in large complex, has 25 “Smart Meters” next door. All of which send electromagnetic pulses all day and night. I’m sure it is effecting me. No one but the Boston ear doc gave this any credence. When I stay at the home of a relative, the crazy flashing lights subside.
This is why I want a good sit down with a true migraine specialist. Im mad. I want answers and I want respect.
Anyone recommend someone good in Boston?