Can anyone recommend a Good Doctor in NYC?

Hi everybody…

I wrote a letter (copied below) to my vertigo support group “dizzinews”… a lovely helpful person over there, sent me here thinking that perhaps someone may have a recommendation for me for a good NYC doc for MAV.

here’s the note I wrote to dizzinews…

I’ve been with the same Neurotologist for many years now… though I’d seen many different specialists before him, I’ve never been given a proper diagnosis… none ever found any treatment to ease my vertigo. My present Doc said to me that they might never be able to find out the cause, and that the only thing he could really do is to monitor me. So for years… no new treatments, only monitoring (with the exception of his suggestion of acupuncture, which I’ve wanted to, but not yet been able to afford to try). I look through the posts here and see so many different diagnosis, and actually feel envy that many of you have a name for what your dizzy problem is. I’d always been labeled as having “chronic vertigo”… or at one time “possible menieres” (thought it’s never been the right answer)… my vertigo doesn’t consistently show on ENGs or MRIs, yet there it is constantly with me 24/7 (for the past 14 years) in varying severity and effects, and rearing it’s ugly head frequently with unpredictable severe attacks that leave me incapacitated for moments to days to weeks. The doctor I see, specializes in ears. When I asked him why my vertigo doesn’t always show on the ENG or MRI… he said that it means the vertigo is caused by something else… but he doesn’t seem to have any answers for ‘what else’ or how to test for this “something else” he means.

Last night I was surfing the web trying to find out alternatives for testing people that suffer from vertigo like mine, but have sometimes normal MRI and ENG tests… Lots of listings popped up in my google search. Many of them had the initials MAV listed. I’d always wondered what MAV was (I’d seen those initials here lots of times, and just thought it must be another diagnosis that had already been ruled out for me). When I read that MAV meant Migrane associated vertigo, I almost dismissed it as I’ve had migranes for the past twenty something years, but my vertigo and my migranes didn’t ever seem to be connected in my mind. Funny too, that just recently I’d found out that the Migranes I have are called ‘aura migranes’ (thanks Lynn S. for putting up those posts that allowed me to finally learn that)… I went on to read about MAV… I was shocked to find that having MAV doesn’t mean you only get vertigo with your migranes… and I learned that people that suffer from MAV can often have long lasting vertigo from days to years (like my 14years!), and that some people with MAV will often not show significant results on ENG or MRI… I read so much about MAV, and everything that I read seemed to described MY vertigo and my migranes like nothing I’d ever seen before. But, the most important thing that I saw was that there were medications to take that give some people relief from their MAV … and they were medications that no one has ever tried on me for my vertigo!!! A STONE UNTURNED!!! I was thrilled and excited… and then thought, if right here, all along there had been this MAV possibility for a diagnosis, why had this never been brought up by my doctors… I’ve always shared information about my migranes with them, why wasn’t the possibility of a connection brought up? Obviously… I don’t know yet if MAV is my diagnosis (I’m just excited over the possiblity of finding a true name to call my vertigo monster) … and I don’t yet know the absolute truth of all the information I found on the web last night… but, it’s a road not yet taken and who knows what else is out there that was overlooked because I’ve only been being “monitored” for the past years. I need a new and up to date dizzy doc … now.

What kinds of tests do they do to see if you have MAV? What kind of doctor should I go to now (my present is a neurotologist). Does anyone have a great doctor they would recommend in the NYC area? I’d be so grateful for some advice on Docs (I’d really rather go to someone that has a good recommendation from here). Switching docs is kind of a scary endeavor being that I am right in the middle of my LTD appeal… but I’m beginning to think that perhaps the years “monitoring” and no exact diagnosis may be what caused much of the problems with the insurance company to begin with. Maybe new and different tests will actually help the appeal too.

I’m so excited about the possibility of new tests and being properly diagnosed, I’ve been fantasizing all day that this will end up leading to the answer to my vertigo… and picturing myself back at work and life again.

Thanks for any advice and Thanks for listening!!!

I saw that no one replied to you. As far as I know, MAV is a clinical diagnosis, although my ENT says that he can “see” it on an ENG. I know that other posters have seen Dr. Larry Newman at St. Lukes-Roosevelt, The Headache Institute. The vestibular disorders association publishes lists of member physicians, and they have one for New York.
vestibular.org/find-medical- … region.php

I’d suggest bringing in the eMedicine article to your doctor, and discussing possible treatments.

emedicine.com/ent/TOPIC727.HTM

Good luck, and I hope you feel better.
Kira

I live in NYC. I happen to know that the Headache Institute at St. Lukes-Roosevelt is doing extensive work in regards to migraine related vertigo.

Interestingly enough, when I went to see Dr. Broner, a colleague of Dr. Newman two years ago, she seemed interested in MAV but admitted that she really didn’t know much about it. Recently, I received a letter from the Headache Institute inviting me to join a MAV support group. Additionally, Dr. Broner left me a message asking if she could ask me a few questions about my personal experiences. I think its great that this team of doctors is showing increased interest in MAV.

In terms of neurologists, yes it is important to find a knowledgeable doctor, but I would say more importantly it is crucial to find a doctor who is

  1. open-minded, MAV is still a relatively new term, even among neurologists
  2. admits to be fallible (i.e no God complex)
  3. is reachable and returns phone calls promptly- when experimenting with migraine meds you will likely need to have frequent conversations with your doctor.

If you are anxious to try something, try eliminating overly processed food from your diet, steady blood sugar can be very helpful when combating any health related condition.

also try Migrelief- its a vitamin supplement with magnesium, riboflavin and feverfer. I also take Butterbur (in the form of petadolex) and coenzyme 10. All of these natural remedies promote stabilized blood flow within your head and have no harmful side effects (that I know of)

I personally see a Dr. Alla Mesh in downtown Brooklyn. Shes a neurologist specializing in migraines. I do not believe she has specific MAV related experience, but she meets my other criteria and has been very helpful.