CBS report on Vestibular Migraine

Specific Illnesses & Conditions VM/MAV
1

Hi Guys,

Looks like this thing is finally getting some news coverage:

http://wcbstv.com/video/?id=111119@wcbs.dayport.com

Best … Scott

2

Thanks for posting. It’s good that we can help each other find information and keep up to date about this condition.
Anette

3

Thanks for posting. It’s great that the it’s getting some attention.

4

Scott…thanks for sharing. I noticed the doctor say that the Vestibular Migraine can last up to 72 hours. I have Motion 24/7…it’s Chronic…so not sure what to think about that?? Any thoughts?

Joe

5

That’s the part i didn’t like either. So many neurologists have said to me that MAV was a stretch for me because of the chronicity of it. That’s just wrong, we all know that, JH knows that, Hain knows that. I would have to watch the video again - where is this guy from?

6

Hi Joe,

I agree. For many this thing is non-stop. I know it is for me right now. In fact I’d say there’s a basal level of activity plus peaks and troughs throughout the day. I know the guy they interview in the clip from the healthboards – Howie. He really likes his doc although I’m not sure I agree with his treatment. Howie is on a boatload of verapamil and a big dose of zoloft too. With that amount of drug surging though my veins, I’d want to be 100%. That’s just me though … I’d rather get by with as little meds as possible and wouldn’t feel very comforable on high doses of anything really.

Scott

7

MAV is 24/7 for me too. I agree that one get the impression that MAV isn’t 24/7 from listening to the doctor on the show, but in the beginning of the show he also mentioned that people with MAV can have a constant feeling of imbalance.

8

One should be so lucky to just have imbalance. :shock:

Heather

9

I know the doctor in the video–it’s Larry Newman from the Headache Institute at St. Luke’s–Roosevelt NYC. We spoke at a conference in Boston last fall, and when I was having a flare, wasn’t getting the support I would have wanted from my current MD, I emailed him, and per his recommendation started low dose zoloft, which has been very helpful.
He’s a really nice person, and I think they just got a “sound bite”.
Kira