@Suffering i just received the usual letter from my neuro which is a review of what was discussed at my appointment, and it says ātheoreticallyā the cgrp drugs may increase risk of high blod pressure, heart attacks or stroke but thereās no evidence to support the theory.
The letter says cgrp meds are effective for 45% of patients ,and that the med should be stopped after 12 months but can be restarted if necessary.
So i guess itās about whether the theoretical risk is worth taking for 12 months.
Thanks @MissMigraine. That is grrrreat advice. Canāt thank you enough.
After a bumpy ride on the first two Emgality shots, I am finally having some relief on the 3rd one. Things have been non stop stressful at my school job and somehow it carried me through with some breaks. Had to use fewer abortives in the first two weeks of this third month. The neurologist was using his own Emgality samples for the first 3 times, but for the 4th one, he wrote me a prescription for the syringe, which despite having insurance, the copay came to over US $400 ! I googled for an Emgality savings card, took it to my pharmacist and she said it came down to $0.
Regarding BP, he also has me on 400mg of Magnesium.
Wouldnāt that help keep the BP stable? I also aim for a healthy diet.
Also he has me lower the base Nortritptyline down to 25mg now which I am slowly tapering from 45mg. My desire was to change my base preventative as Nori seemed to stop working and I continued to have daily headaches, but he says he canāt have me start another AD med until I come off the Nori. In the meantime, to get through that very roller coaster, the Emgality will carry me while I come off Nort.
One of his Medical Assistants take the Ajovy from September to January when she says her migraines are bad. I wish I could do that! But while I am at this job, I desperately need some relief. I am not crazy about being on the injectable and I also donāt know if it will give me relief every month. All these symptoms and meds seem to change with time. I have to tell you, when my symptoms show up and donāt respond to meds, it is an impossibility to get through one day. I beg God for relief. The other (Nurtec as a preventative) did not work for me.
Sorry for the question but why do meds need to be stopped after one year, i thought you could be on them them indefinitely, also is it because after one year it gives the brain overall better recovery?
Hi, I think there are a couple of reasons. One being that some lose effectiveness over time. Another that brain recovery should have begun and hopefully established. Also, docs are not keen on keeping patients on drugs long term if itās not needed.
This said, I donāt like the idea of going off Ajovy any time soon without a replacement.