i havent been around for awhile because ive given in 4 years and counting, you can imagine how bad my situation is. To add insult to injury drs found an avm in my brain which freaked me out but im ignoring it for now, its too much. my question is can nori help with headaches, ive realised they are more frequent than i care to admit to. ive been keeping a botox diary(which didnt work) and i have them 7 days/8hrs + pretty much.
ive tried sandramigrane, made to dizzy lasted 1 week, inderal 10mg 3 weeks, again dizzy, botox, no luck and some antihistamine 2 months no luck and serc.
i really need help with migraines as i cant over do asprin/OTC MEDS(doesnt work anyway) and my head is freakn KILLING any worse and i be needing morphine! .
ANY SUGGESTION WOULD HELP as i cant go back to the neuro at the moment and my dr will give me anything i ask for as long as its not a vasco constrictor due to avm, thanks guys for any replies
Hi Becd,
I feel your pain, as I too get tons of chronic headaches, at least 4 per week. Not to scare you but Nori increased my headaches in such severity that I thought I was going to have to go to the hospital. Have you tried a beta blocker? Proponanol is supposed to be one of the very best ones for migraine. I took it for a week and didn’t have a headache the entire time I was on it, I had to get off it bc it actually make my vertigo worse but I think it may be worth a shot. There are other BB’s that are also very effective. My sister gets horrific migraines and she takes Topamax and they have improve significantly.
Good luck! The headaches on top of the vertigo is a nightmare!
Elisha
Hi there,
Im on 14mg of Nort. I dont have daily headaches, but I can say it didn’t get rid of the few I do get, but hasn’t gave me any either.
From what I have read and what heard, Nort and Ami are really good for taking away headache pain. But the Nort usually has to be at least
between 20-50 for headaches, some do get relief at 10mg but most of them are higher.
Good luck,
K
Many here have had success with nori. I would also suggest Topamax, as that has provided great relief for me with both headaches and dizziness.
I hope you can find some relief soon, sounds like you are really stuggling. Hang in there!
Anne
Unless you are feeling bad side effects, 14mg is a very small dose unless it is somehow being measured differently than how i am getting it. I’m currently on 100mg and was up to 150mg at one point. I didn’t even know it came in 1mg increments–the smallest i’ve had is 10mg.
Had terrible migraines daily for months. Tried Inderal, Amitriptyline, Nori and finally switched to Prothiaden. The headaches began to lessen when I was up to 50mg and went away at 100mg - took me several months to get to that level tho.
Hope you soon find a med that gets rid of the migraines - they are so debilitating.
Barb
thanks guyr for replies its really just pot luck isnt it. maybe itry another beta blocker again it just made me so much worse on the dizzy scale. i think i have to look a nori at some stage but taking Topamax does worry me due to s/e
I’ve been on treatments since last September/October. Verapamil did nothing. Nortriptyline gave me some minor relief but just a little, and I took it up to 150mg. I’ve now been on Topamax for about 18 days and the improvement is dramatic. I’m not even up to 100mg yet, and I was supposed to give it 2-3 months, yet I already feel better than I have since the first day this thing hit me last summer.
bedc, like you I was very worried about the s/e of Topamax. The internet can be a scary place when you read about all the crap a medication can do to you. All I can tell you is, so far the Topamax has given me less s/e than either the Verapamil or the Nortriptyline. The only real side effects I’ve noticed are some tingling in my hands in some situations, like when I take hot showers, and some stuff like carbonated drinks taste weird. That’s about it. Whenever I up my dose, I do get really dizzy for about 3-4 days, but that peaks on day 2 of the new dose and then fades as I get used to the new dose.
Everyone is different and some people do not tolerate Topamax. But for me (so far) it seems to be working out just fine. As long as you are aware of what the bad s/e are and are vigilant in looking for them, and have someone else keeping an eye on you to watch for any kind of mood swings early in taking the medicine, I think you can take it without too much worry. If you notice anything bad, you tell your doctor right away and probably he/she will get you off the medication.
That doesn’t mean Nortriptyline wouldn’t work for you. It’s definitely one of the drugs people have success with.
Have you tried all the lifestyle things that you can? It’s certainly worth a try - I was “naughty” with regard to my bedtimes, and I’ve worked toward getting those closer to being the same time every night, and doing the same thing with my getting up time in the morning. Our migraine brains do NOT like these schedules to be changed. Same with mealtimes!
I work hard at being well hydrated too - it’s very easy to become mildly dehydrated, which migraine brains do not appreciate.
And the diet. Maybe you don’t have any food triggers, but since you’re suffering it may be worth being super strict to see if you’re one of the sensitive people who actually starts to feel better when you follow the diet.
Caffeine? Have you tried giving it up? Even “decaf” coffee and tea which still contains some caffeine? (I learned that here!) And chocolate?
Have you tried an ice bag on your head? I find that helps me.
I’m SO sorry for what you’re going through - I’m in the middle of a bad headache at the moment so I really do sympathize. Good luck, and I hope you get some relief soon.