Concussion

Specific Illnesses & Conditions
1

Hi I have over the past 10 years with the help of Pregabalin been able to return to a normal life. However 4 days I fell off a bike and banged my head. Since then on top of concussion, I have what seem to be MAV symptoms of old : unable to look at screens, disequillibrium etc. I am terrified this is going to send me back to being housebound searching for new medication. I would welcome any advice. Thank you

2

Fiona,
I’m so sorry to see this. It’s encouraging to see that you were symptom free for 10+ years. But your experience shows that this disorder only takes a little push to come back to the top.

I was symptom free for two years, and suddenly, I find myself back here as well. I can only suggest to you what I am planning to do. I have a neurologist that specializes in migraines, and vestibular disorders. I’m going to talk with her to see if a round of physical therapy might get me back on the right path.

I hope your stay here is short and your return to normal life is soon.

3

Hi Eric,

thank you for your kind response. Yes our brains seem so sensitive in this regard. Physical therapy sounds like a good move. I was signed off by my consultant who is now exclusively private so have to find another neuro-otologist on the NHS. I think the closest is London . Funny how like yourself , we get a remission then bang, off it goes ,
best of luck and keep me posted ,
Fiona

4

Fiona, I am sorry for this event with your bike. I agree that we have sensitive brains, but it seems that the medication works for you. Wait a little bit but if the symptoms continue, your neurologist can help you increasing the medication or adding something new. Have faith that the medication works for you. I have read posts from others and they have problems despite the medication. Also remember the plasticity of our brains. Maybe this is just a phase, but the brain will return to normal. Good luck!!!

5

Hi Maria,

thank you for those supporting words. I certainly hope things get back on track. Who knew a tap to the head could cause such trouble ! Such a shook after being clear for so long

Fiona