I feel its not VM and none here in my country can tell me what the fuck this is. I cried a lot since all this started but I never felt the relief you get after a cry. When I focus on something my head hurts even my jaw like it is tight and ofc vision is moving side to side. And when I move my head it feels like the movements of eyes are not in coordination with the movement.
Thatās right. That is what is happening exactly like you say. It is the most common of MAV symptoms.
You have yet to mention a symptom that wasnāt VM. Iāve read all your posts. Youāve got classic VM - right up to the anxiety and failure to accept the diagnosis. The hardest part is accepting you have a disability, one that takes a long time to heal from with no long term guarantees. Do cry. Do get angry. Go thru the grief process and come out the other side.
We have the exact same thing you have. We understand completely. We are here for you. We are your family.
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But with the research I have done it could be like 3 to 4 other things than VM(BVW, BVD, PPPDā¦) Its really difficult to accept another problem which is huge af, cause it affects my eyes and the ability to do anything I feel like I am blind. I am really sorry for making the same questions and talking over the same stuff. My life was already set back and now its going backwards. If I could find a cure for my eyesā¦ . Thanks for the kind words I really appreciate it I am feeling hopeless cause the time passes and I see no progress and summer is about to end.
Are you thinking in terms of years rather than months or weeks?
After the third month I started to think in terms of months and years and I am scared af. And I have not the time to rest to be honest.
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Can you gear back some? Rest is pretty much required to heal. You canāt put out a fire by pouring fuel on it.
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There is no ācureā, just symptom control as far as we know. The body will try to heal itself though.
As far as your alternative diagnoses go, remember: diagnosis <> aetiology.
Science cannot tell us for sure what is going on. There are some simplistic explanations and some alternative hypotheses.
My bet is PPPD is just MAV worsened by particularly high levels of anxiety.
I suspect thereās nearly always a way out of this but itās never going to be fast. Your body will find a way, there will be no lasting damage and you will get your life and sanity back.
Explore the vestibular suppressants to see if you can sort your eyes.
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I had one diagnosis which I made but its a bit weird and I cant be sure about it, poisoning from my pc. It had a weird smell when I played and also I had all my doors closed. Only if I fond ever any burn stuff inside it I may confirm it.
Well if there is no cure, instantly you stop doing stuff you used to do forever, like driving at night.
Thatās not to say you wonāt get better. I hope you understand the distinction.
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Yeah sure I get what you say but if the āget betterā is the āused toā the symptoms, its not a progress for me and currently is the only thing I see happening. Also the drugs keep under control the panic.
Nope. Itās not being used to. Itās real recovery. But it can take years it seems. And experience does vary.
It is disappointing the doctors canāt seem to improve on the length of time it can take, but at least the medication can help most in the meantime.
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Yes this is so true Emily. I have discussed this fact many times with Helen and after been assessed from a Dr who my employer paid for it was written in black and white that " this disability is symptom managed only by medication and not a cure"
I know some on here get better and im so glad we have their stories to read and give us hope. For me i just feel exactly like you describe this crapā¦disabled. i just cant get through the mornings without being ill no matter what.
Jo 
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So with all these post I get one thing that you will āneverā reach your normal old self ever just a max of 90%. This is just sad especially for people like me who are really young and are losing so many stuff. Its incredible how fragile we areā¦
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Dude you can stay at 90% for life with meds and trigger management.
Find your med.
Dr.S said you keep a mask on this long enough and it will disappear.
Focus on habituation where you acclimate your brain to sensory overload. Compensation is not relevant for VM only habituation.
You can get your life back , chin up and soldier on !
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I get it, I truly do ā¦Iām 30, Iām supposed to be enjoying my life, these are supposed to be the best years for a woman but instead Iām dealing with this crap ā¦I get the grieving and the despair but we canāt give up, we have to keep pushing and trying to find a new normal where we can manage to be functional instead of focusing of what we were before. 
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30s are your best years? My life bloomed at 40.
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Kon, I think one thing you need to keep in mind is that there have been thousands of people on Mvertigo who are not represented here any longer. They have gone on to live their livesā¦ 80%, 90%, 100%? Who knows! There are people who recover to their pre-MAV selves, or maybe even better versions of themselves. Iām already a better version of myself and Iām not 100% healed physically. Im convinced that the longer you stay stuck in the āIāll never get betterā mindsetā¦ the longer youāll stay there. Tomorrow is another opportunity for improvement and as long as you have tomorrowās, you have further opportunities.
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Hahaha thatās what my culture made me believe ā¦Iām going with your version instead!!!
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Sorry to be the bearer of bad news Diana but 30ās are your best years 