I’ve had PE tubes in both ears for three years. And MAV before, during and now after removing the tubes this summer. They improved my ability to handle pressure changes within the ears themselves and compensated for my ETD. (Frankly, I really miss that.) They did not affect my experience of MAV.
Kon, how many times have you heard from us here that the “vision stuff” is part of 90% of us MAV’ers symptoms? Every one of your symptoms that I have seen you write about are common for MAV. I can almost guarantee that you will not improve until you accept your diagnosis. The mind / body connection is too great.
As Emily points out… yes, it is practically diagnostic compared to many other vestibular issues. See quote from Dr Goebel:
Full article found here:
https://www.enttoday.org/article/migraine-associated-dizziness-is-elusive-to-diagnose/?singlepage=1
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I think they dont give the proper attention because I am 23. They did the same when I was searching my other health problem and still after 6 years is a mystery. Never checked me for a lot of time to see of I will lose completely my balance. It had a bad start, my vision was blurred af and couldnt focus on a single thing without having pain all over my haed and the feeling that I am gonna collapse, until of course I get used to it. Get used of this sh*tty vision and all the headaches, brain fog, the blurry wobbly vision when I move my head.
As I said you may have a disorder which has some symptoms same as another but the diagnostic symptom would be one only. I went to many docs and said I have blurry vision and everything is wobbly, this is basic symptom of bilateral vestibulopathy, now how this happened it may be cause of ototoxicity from doxycycline (if this is the reason you should avoid ototoxic drugs), neurotoxicity, etc. None of the docs could not answer me why I can see properly. If I dont find the “proper” diagnosis fast enough I may never find it because at some point the brain adapts amd going better on tests, so you lose the proper treatment and you just try to get better on your own.
I have read the article a month ago. I dont know if MAV/VM has for sure vision stuff like I have. I never read here if someone feels their eyes stiff or feel their vision too slow. Also many here say about the rocking sensation which I had for 1 month and some random days.
Yep, many MAV sufferers talk about this. My left eye was stiff and Amitriptyline helped loads. I suspect it was fighting VO reflexes. The Ami helped minimise those.
If you have that in both eyes that’s telling you something I suspect. For one, bilateral PLF is extremely unlikely apparently. Discuss that with your doctor.
I asked him about PLF he said no, but I have problems with speech, meaning that I get really dizzy like I am ginna to pass out if I talk a lot also laughing.
What about coughing. Sneezing and straining while using the restroom ? Does it make symptoms worse.
All of them make my eyes explode and cant even have a clear vision.
Have you seen a neuro-otologist?
Yes the one gave me the treatment. He right away told me I have VM.
Can he explain how you got it?
He told me this runs to my family( rarely only my mother had migraines) and you can trigger it from straining a lot (excersing with weights) l, not sleeping enough, having a “bad” lifestyle like I had. He told me it can create all the symptoms I have but he couldnt explain a lot the eye issue.
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there are a suspicious number of gym addicts and personal trainers that frequent mvertigo, I have to say.
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And long term heavy duty computer users.
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Just to clarify I am not a gym addict, with this chronic pain you cant do a lot of stuff.
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