Hello,
I was recently trying to describe to my friend the symptoms I get from MAVā¦ does anyone else relate to this type of feeling:
Sometimes when its on the lower end of the scale, I feel a mild āgrogā like Iām kinda dizzy but not in a traditional sense of the word. Itās almost as if you are high and a bit disconnected visually.
I have also described more severe symptoms like the feeling you had when you were little and couldnāt swim, so youād hold on to the side of the pool because you felt uncertain in your surroundings. This is sometimes what I feel like in the normal world. Like I have no concept of balance and its not just a ādizzinessā its like my whole perception of my surroundings is altered and confusing.
most recently ive been getting the head fog type groggy high feeling most days, and it almost feels like my eyes are kind of hot. I know that sounds weird but its as if my eyes are irritated almost.
ach i dunno, just curious if anyone relates to this madness
Yeeees I absolutely relate to this! I am dizzy all the time sometimes itās just about bearable other times itās horrible and takes everything in me to focus on what Iām doing and whatās happening around me. The pain is really bad, but I find the dizziness is a real struggle.
So youāre not alone we completely understand how youāre feeling
Yes I identify with this, as my symptoms have calmed down a bit I can feel pretty normal 70% of the time (sitting on the couch, a lot of my working day, reading in bed) but the brain fog is still lurking under the surface, a bit of tinnitus can linger in the background too.
My symptoms are at their worst when I just wake up, when my house is really bright during the day and Iām moving around, when Iām walking outside, exercising in the gym and my worstā¦ driving! Most of my symptoms now feel visual in nature, like Iām not focussing properly, like itās too bright and I have pressure behind my eyes, my eyes are tired or like I canāt quite see my peripheral vision correctly. It can all be so hard to describe.
I had a couple of drinks on a city break with my husband and the weird vision felt more normal, like my brain was expecting it it made more sense with alcohol in my system.
*edited to add with the eye thing, Iāve been using drops as my eyes feel so grainy and irritated at times, just the regular hydrating ones. Helps
sometimes itās just about bearable other times itās horrible and takes everything in me to focus on what Iām doing and whatās happening around me. The pain is really bad, but I find the dizziness is a real struggle.
we completely understand how youāre feeling
it made more sense with alcohol in my system.