I am 10 months post partum but currently experiencing the third episode of vertigo over the last 7 years. I am 32 years old and have suffered actual migraine headaches since I was in grade school.
Over the years, I never noticed any dizziness or vertigo but 7 years ago, I was studying in University while also working full time plus had the stress of living alone plus was diagnosed with GAD at that time.
Anyways, one night I woke up with a rocking type vertigo that shook my world. I didn’t have the “spinning” but had a sense of motion when I wasn’t moving.
I calmed my life right down, started to eat right and within two weeks it was gone.
I still got migraines and for as long as I can remember (since my first panic attack at 16) I had visual aura. I constantly have visual snow, grocery store isles feel almost psychedelic to me and when I get a migraine I gave blurry vision. Also, if I look at a black computer screen with white writing I see lines after in my vision.
Anyways, three years after the first attack I developed an unsteadiness feeling that went away in a month. It caused me a lot of stress because I didn’t want to feel like the first episode. I went to an ENT who said no menieres, or fluid and my GP said BPPV but said also no nystagmus. He chalked it up to GAD again.
4 years later (now) I am 10 months post partum self employed and basically have been working full steam ahead since 2 weeks postpartum.
I knew I was stressing myself out between baby, work and four year old but I kept going. I got a lot of migraines that came and went but one night I woke up and my head was spinning. I was supposed to give the baby Advil and couldn’t even read the box - I was so disoriented.
I went back to bed and figured I was just way overtired.
Then over the next few days I got a migraine so bad I thought I was going blind. I was dizzy, migraneous and had aura issues.
When that subsided I kept getting positional vertigo. I would be holding my cellphone while on the phone with a client and get the spins or looking down to change a diaper followed by the spins…
The spins were happening more frequently to the point where I ended up ER. I had nystagmus and was told to do the eply maneuver.
So I tried the Epley at home which has only made things worse, I am more off balance. So I’ve tried the half summersault which has made me feel a little better but according to ER doctor that means there are indeed crystals moving around.
Anyways, a part of me doesn’t buy it. Yes I get positional vertigo lying down especially on right side with nystagmus but the dizziness is there all the time (it’s been 2 months now).
It seems every time I experience extreme stress I get throw type of flare up. I am currently waiting to see an ear nose and throat specialist but feel that won’t give me much answers.
Firstly do you think this is MAV and secondly who should I consult or how can I make this dreadful feeling stop?