Hello,
Im really having a hard time, I just dont think I fit the profile of MAV. I read the posts and articles and I dont feel I fit in to this category.
What do you all think…? I was told MAV by 2 docs and Chronic Subjective Dizziness from 1 doc. ( due to anxiety that my headache and vertigo will come back, and note Im very anxious, I dream about it most nights)
It started with a headache off/on for 2 weeks. Then I was playing with my son and twisted and felt a pain in my neck down my arm, neck hurt all day, next day headache full on. CAR accident 8 months prior. Rear ended. Also prior Neck surgery in 2009. on C5… did wonders!!! Gave me my life back.
Vertigo did not come until a month later, after constant worry, as i did not knw it was my neck at first and went to several doc’s that had no clue. Becasue
my Head hurt bad, worse with movement. 100% GONE when I would lay down or recline in chair. So that was def. not a migraine. Its 90% gone. I say 90% because… analogy… If my head was a campfire… the pain would be the fire, the fire is out, but its still smouldering.
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I have had 3 migraines in my life. Which I get aora, Lose speech, and then headache pain. Gone within 2 hrs of sleep.
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My mom and grandparents used to suffer bad migraines
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I had a headache for 74 STRAIGHT days. Due to neck. Had surgery, went away, came back, took a dose of steriods and pretty much gone. The day after I started medrol
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After headache started and before surgery, I got Vertigo, BPPV- Epley got rid of it.
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Came back November 1st. Epley again got rid of it. ( it was 7 weeks since the first one)
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EVERY since I got the vertigo episode, I have always felt dizzy/yucky.
My symtoms only come from positional head movements, and reading on the computer. Sometimes when Im sitting, I feel like im moving a little bit.
Better when Im standing and moving around. Worse when I sit down and lean back on couch, WAY worse when I lay down. I feel like I dont know how to describe it. Like my face feels weird, like the blood is draining from it, and then I feel super yucky, and my head feels heavy and fuzzy. Sometimes its bad enough I feel like im going to spin, but I dont.
Its also hard to be on the computer after a while. However, I did get a new moniter, I had the old school, and all the new stuff sucks.
Its hard to focus and sometimes, I feel like my eyes like blanked out or something and felt a little dizzy.
When I look in the mirror, I do feel off, just like weird.
My balance is great! Never feel like Im going to fall, even when I had the vertigo. The first time I had it, I had it for 14 days. Before I figured it out and went to the PT for an epley. It was again, only at night in bed, or when I layed back in the chair.
Last but not least, If it is MAV…
I tried Celexa, a few side effects… may try again, but dont know as it made my head hurt, rash and ear noise.
I tried Topamax, but was only on 25mg for 3 weeks. I had a bit of a foggy head, and a little depression, but handled it fine. Got off, because a diff. doc wanted me to go on Propranolol or Effexor, which Im not so sure of. When I stopped the 25mg, I actually had a migraine 3 days in a row! Not my normal headache. And had major anxiety. Withdrawl lasted about 4-5 days. So maybe 25mg was enough for me…? IM afraid of it, because my second episode of Vertigo/BPPV was when I was on it for 2 1/2 weeks. COINCIDENCE…? SHOULD I NOT FEAR THAT, AND REALIZE, IT WASNT THE MED…?
I took klonopin with it. That actually gave me real vertigo, not BPPV 3 times, after taking it. I was told to stop taking it, and never had that sort of vertigo since.
Im torn. I have the bottle of Topamax still. Do I give it another shot? It helped me sleep… which I have not been able to since I got off of it.
I totally lost weight, which I really dont need to do, but hey if It doesnt work, then my next med will put it back on and i will be even…!! LOL
Or do I try the celexa again, and wait it out to see if the side effects go away. Although even after I quit, my ear sure was weird for a few days after.
Or maybe those 2 together?
It would be nice if there werent sooooo many options, and just a few that worked for the entire population!! Dreaming I know.
If its not MAV, then I really should be on an anti-anxiety med. Maybe try Cymbalta after Celexa.
Those are the only meds Im really considering at this time.
I know its alot of questions, and Im a pain in the ASS as Im AlL over the place. But give me a break, Im new at this, and my mind is a cluster F***
Thanks all!!!
Kristina