I also wash my hair before I go to the hairdresser. I do not lean back in the salon sinks anymore after experiencing severe pain and dizziness after the girl forgot to cushion the neck rest. Even with the cushion on the neck rest I refuse to put my neck and head in that hyperextension position. Itās a nightmare for me.
Me too! For some reason I find my head feels awful and dizzy just sitting in the chair. The hair-wash is even worse so I try to wash before I go to the salon too.
Mobile hairdresser. Mobile hairdresser. Mobile hairdresser. Sit on your own chair. Boil your own kettle. How to live with MAV more comfortably becomes an art worth accomplishing I soon found. Helen
I know and Iām so sorry. I spent the three days before Christmas crying nonstop as I thought about the life that could have been had this illness not morphed into its current extreme state. Please know I empathize. The advice is always to live in the moment, appreciate what you have and what you can do, rather than what you canātābut that is hard to do, and something I feel like I shouldnāt have to do! I completely understand the anger/frustration about all that you want to be doing. Often I just want someone to tell me itās ok to be upset about being so sick. I know itās not a place you can live all the time, but somehow that validation would mean a lot. It is as though my mind tells me I am one kind of person, the capable, active, attractive person I used to be, and my body/brain just stop me at every turn from being that person. Butāit is possible, indeed probable, that over time things will improve so that there are fewer limitations and youāre able to partake of a few more activities and feel as though youāre not missing quite so much. I really hope that is the case for you (and for everyone).
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Hair washing is extremely overstimulating. I sit in the tub and use a handheld showerhead with adjustable water-pattern settings that easily attaches to your showerhead. I have tried using goggles. There are also inflatable hair-washing contraptions that allow you to lie flat on your bed- I used a trashcan to capture the waterflow from the drainage tube. At my worst, I couldnāt wash my hair very often, and I felt disgusting about it, so I shaved my head bald (I am a female) for about 2 years and wore a hat or wig when I went outā¦I got soooo many compliments on my style and color and people couldnāt believe it was a wig if I told them. I was able to clean my head with a washcloth daily. If hairwashing is a problem, I highly recommend investing in a synthetic wig. They look very realistic, and unlike ones made of human hair, you do not have to style them. Just throw them on and you look like you just spent 30 minutes blowdrying your hair to perfection! No keeping up with coloring roots, hair cuts, styling and those horrible trips to the salon. A wig costs the same as a few trips to the salon. I wear them even with my hair now, because I get too dizzy styling my hair to go anywhere afterward.
As my god daughter said when I explained my condition to her āthatās life alteringā. First and only person ever to say that to date. We all have to adapt to our new norm as best we can and I say good on you for having found a way you can not only cope but thrive. Appearance and particularly hair are so important to well being. Helen
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When I wash my hair with shampoo, it usually leads to breakage. Hence, I gently touch my hair and apply a mild shampoo. Even while combing, wet hair also leads to hair fall. How can I prevent these? Can anyone help me?
Sorry not sure I understand your problem really, I would think itās perfectly natural to lose some hairs when washing your hair. I always have done. As have my many long haired dogs over the years when bathed. I was always told not to comb wet hair because it causes split ends. Donāt know if that is true or not. I donāt know whether you are taking preventatives or not. Some drugs can cause unnatural hair loss as can stress and menopause. Sodium Valproate will and some beta blockers. If you are losing a large amount of hair on meds Iād speak to your doctor. A small amount try your hairdresser first. Helen
Hi Sandra
Iām not sure whats causing your hair loss?
Is it a medication side effect?
A while ago I felt like I was losing more than I should have been so tried the Plantur 21 caffeine shampoo. It did seem to make my hair appear fuller more volumous but wether it stimulates the actual root Iām not convinced? Depending on age I know you can get the shampoo Plantur 39+ maybe give it a go?
There are certain vitamins reputed to help. @janb takes them.
Hi Sandra @sandrajames
I noticed that my hair was getting very thin around the hairline and was coming out more than normal when I brushed my hair. I decided to try taking an A-Z multi vitamin from Boots but a friend advised me to switch to a vitamin mix that was especially for skin, hair and nails as the vitamin mix would be higher re the ones needed for hair etc. I took one from Boots for about a month and it seemed to help - fewer hairs in the hair brush, but then I stopped taking them when I ran out and I think my hair is suffering again, so I have just bought some more!
The reason I thought vitamins might help is because of the diet I have been put on by Dr Surenthiran - and I wondered if I just wasnāt getting enough of the vital vitamins, plus I am often folate anaemic so should generally keep taking a low dose of folate as every so often I have to take a prescription based high dose. Jan