Yes, for me this is also the worst and most debiliting symptom(s)—the spaced-out disconnected feeling, disequilibrium and floating feeling while walking, visual vertigo, brain and eyes not in sync, always worsened by motion. It just takes all enjoyment out of all activities and makes me feel like I am not participating in my life, just existing.
For me the severity of these vestibular symptoms, if that is the right way of putting it, mirrors the severity of the headache—so I view it all as part of the migraine, and am counting on the medication to help and in the long term, with luck, the brain heals. I have no idea what is happening in my brain physiologically to cause this; seems like no one really does.
Yesterday was an encouraging day (almost clear-headed, virtually no headache) and today quite a bit worse on both fronts. Again, hard to say why—yesterday’s weather should have been triggering (thunderstorms and rapidly changing barometric pressure) but wasn’t; today weather is stable and head is gross.
Since there has been very slow and gradual improvement in the 3 1/2 months I’ve been on medication, I can only hope that more time will bring more gains. I try to reorient my thinking and view the healing as my purpose for a while now. It is easy to feel that all this time where I am not working and doing so little socially is wasted or lost, but that’s a terrible frame of mind to be in. So, for now, my purpose every day is to give my brain time and space to heal, and do what I can physically to regain some of the fitness I’ve lost (due to the migraine and other life events).
I think Winston Churchill said “When you’re going through hell, keep going” and yoga philosophy teaches that “The only way out is through.” I know there’s not going to be a magic day where I wake up and all my physical problems are gone; I’m going to have to experience it all on the way to something better. Without the intervention of magic (which I still do pray for), there is no other way. A friend of mine said that since this condition has gotten worse, it can also get better. She is a scientist and that logic seems sensible. I try to remember that through the ups and downs.