I haven’t been on this forum in years because my MAV symptoms improved so much over time that I didn’t need it anymore. This week it occurred to me to share my story, as hope for others. I felt so hopeless at the time I discovered this forum. Since then, I’ve been through many life events, two kids (ages 3 and 6) and several jobs.
I don’t have any big exciting breakthrough news, but for me, cutting out beer, hard liquors with the exception of an occasional vodka mixed drink, red wine and coffee nearly 10 years ago made a HUGE difference. (But what does she drink!?? White wine, black tea).
I still suspect that birth control may have made things worse for the many years I was on it. I’m now on Mirena instead of pills and rarely have issues.
My biggest to this day triggers are over- or under-sleeping – more or less than 8 hours and I’m lethargic, groggy and dizzy – actual motion such as boating/airplane turbulence and occasional hangovers. All of those things are manageable and temporary. My day-to-day life has improved so much that I still work an office job (and have even risen to executive level at a financial company) and I do just fine.
I hope this helps in any way! For so many years, I turned to this forum in anguish and tears trying to find anyone who could help me - even doctors failed. I eventually treated myself. Hang in there! I know everyone is different and probably has different triggers, but if I can help one person, it’s worth it.