Hello, I’ve read a few stories here and it seems to be a reoccurring theme that doctors dismiss this as anxiety induced after you’ve had an MRI.
My story begins abruptly 5 months ago when I got into bed that night, closed my eyes, and I started feeling like I was swaying and rocking on a boat. The next day I got up and the floor felt like walking on a trampoline! Worst still, I was seeing inanimate objects like the TV or window handle ‘moving.’ Sometimes stretching or shifting side to side.
The symptoms did not abate after a week so I went to the doctors and I was sent to a neurologist who tested me and thought it was anxiety but ordered an MRI just in case.
It came back 10 weeks later clear and I was discharged. So I go back to the doctor and ask to see an ENT, I’ve had genetic hearing loss since I was 17 and I’m now 31 so the meniere’s diagnosis doesn’t fit. I don’t have violent spinning attacks, my rocking and seeing things move is 24/7.
For the past 5 months, I’ve had to fight to get sent to the vestibular clinic to be tested and I’m waiting for that appointment but I’m at my wits end with anxiety and no compassion from my family. I’ve had every eye test, including an OCT and dilation, and they’re fine.
My symptoms are constant and not attacks:
Rocking on a boat feeling, worse with my eyes closed.
Ground feels soft or walking on cottonwood.
Objects moving or shifting when I focus on them. Words and reading is difficult due to words moving.
When I stop walking, the floor zooms out if I look at it like zooming out of your camera.
I feel constant anxiety.
My eyes feel like they’re moving side to side slowly sometimes that’s perhaps nystagmus. I see it more in my periphery vision.
I feel like my head is heavy and disconnected from my body sometimes.
A fullness in my right ear and like it’s trying to turn my head.
They’re the most difficult symptoms but it’s the visual objects moving and floor or wall ‘breathing’ that frightens me the most.
I cannot find anyone with my exact symptoms but it’s obvious from reading the forum that vestibular disorders have a wide variety of symptoms.
I hope I can get into rehabilitation soon but it’s the NHS so god knows how long the wait is.