Mrs G, I was reading that you had experianced something similar to me,
sometimes i see frame by frame , I was talking to a work mate and he said he had this as well, i couldnt beleive he understood it, i have it when i go unde fluro’s for any length of time, it’s frieghtening thats for sure, Ive also had it just before losing control of my legs, and being rushed to hospital for superventricular tachycardia.
my fireindwho gets this has diabetes, strange, i asked him to ask his doc , what this really was and why he gets it with diabetes! especaily sinse his diabetes are well controlled when he first had the freez frame type vision. he dosnt suffer migrianes iether???
anyway thanks for listening.
jennyd brisbane rocking for 13 years
now on verapamil two weeks.
I posted the aura site on another thread: check out the left hand side of the page, what you describe is mentioned:
migraine-aura.org/content/e2 … ex_en.html
Kira
Thanks Kira , i did look at that , but mine dosent leave a trail of the same picture, it just one frame at a time, but i suppose its the same thing realy.
i’ve been trying to find it at pub med and wanted the medical name for it , but i cant find it so i’ll just keep looking.
thanks again, jen
My daughter described it the way you do: as if life was a movie played a frame at a time. I think it’s a version of cinematograph aura. Here’s Oliver Sacks’ description of it, from the site:
There is a rare but dramatic neurological disturbance that a number of my patients have experienced during attacks of migraine, when they may lose the sense of visual continuity and motion and see instead a flickering series of ‘stills.’ The stills may be clear-cut and sharp, and succeed one another without superimposition or overlap, but more commonly they are somewhat blurred, as with a too-long photographic exposure, and they persist for so long that each is still visible when the next ‘frame’ is seen, and three or four frames, the earlier ones progressively fainter, are apt to be superimposed on each other. While the effect is somewhat like that of a film (albeit an improperly shot and presented one, in which each exposure has been too long to freeze motion completely and the rate of presentation too slow to achieve fusion), it also resembles some of E.J. Marey’s ‘chronophotographs’ of the 1880s, in which one sees a whole array of photographic moments or time frames superimposed on a single plate."
(Cited from Oliver Sacks, ‘In the River of Consciousness’, The New York Review of Books, Volume 51, Number 1, January 15, 2004)
kira
thanks so much Kira. I’m seeing a new neuro in about 4 weeks so i’ll tell him. I’m not so sure migraine was what started my origonal rocking or vision problems as my freeze frame aura and co;ours have only happened within the past year , the flickering wavy vision has been going on for longer, but i didnt see it in the circle that i recognised as a circle in the past 4 months, it was there but never this obvious. my rocking vision was over shaddowing the whole visaul stuff, and i thought it was just another part of a vestibular problem. ive always said my illness was very viaul but i dont think i even knew how true that really was?
I’m confused as to what came first. I know the burning of the base of my scull has always been a prob especaily under fluro lights, or during a stressful situation but i dont think i put 2 and 2 together as ive had other health issue’s that took precedence. (ALLERGY)
Ive been told so many times we just dont know whats wrong with you, and had some doc suggest stress or a depression, like others on tis site THAT dianosis has set me back so many times , made me feel they may have been right, and questioned myself over and over again, but I know I’n not depressed , i just want my old life back!!!
the only thing I dont get is that the only thing that dosnt add up here with MAV diagnosis is, WHY? dont i have true vertigo(spinning) the only thing i have that is familiar to that is seeing my paintings on the wall rotate very slowly. anyway it’s a;; good , ive been on verapamil for the past 2 weeks and had my second day not rocking so all’s good. I’m not holding my Breath thought, lol. ive had so many faulse alarms so far, remission would be great, but not if it dosnt last, or it will just reminde me of what ive lost when it comes again as it dose’
I cant imajine what it would be like to wach your Daughter go throught this and understand how she must feel, I’m a mum of a 22 year old Daughter when she has a cold my heart breaks .
thanks so much for that. i hope all of us learn a little more about this stuff soon so we can get te best help we can.
thanks again jennyd
thanks so much Kira. I’m seeing a new neuro in about 4 weeks so i’ll tell him. I’m not so sure migraine was what started my origonal rocking or vision problems as my freeze frame aura and co;ours have only happened within the past year , the flickering wavy vision has been going on for longer, but i didnt see it in the circle that i recognised as a circle in the past 4 months, it was there but never this obvious. my rocking vision was over shaddowing the whole visaul stuff, and i thought it was just another part of a vestibular problem. ive always said my illness was very viaul but i dont think i even knew how true that really was?
I’m confused as to what came first. I know the burning of the base of my scull has always been a prob especaily under fluro lights, or during a stressful situation but i dont think i put 2 and 2 together as ive had other health issue’s that took precedence. (ALLERGY)
Ive been told so many times we just dont know whats wrong with you, and had some doc suggest stress or a depression, like others on tis site THAT dianosis has set me back so many times , made me feel they may have been right, and questioned myself over and over again, but I know I’n not depressed , i just want my old life back!!!
the only thing I dont get is that the only thing that dosnt add up here with MAV diagnosis is, WHY? dont i have true vertigo(spinning) the only thing i have that is familiar to that is seeing my paintings on the wall rotate very slowly. anyway it’s a;; good , ive been on verapamil for the past 2 weeks and had my second day not rocking so all’s good. I’m not holding my Breath thought, lol. ive had so many faulse alarms so far, remission would be great, but not if it dosnt last, or it will just reminde me of what ive lost when it comes again as it dose’
I cant imajine what it would be like to wach your Daughter go throught this and understand how she must feel, I’m a mum of a 22 year old Daughter when she has a cold my heart breaks .
thanks so much for that. i hope all of us learn a little more about this stuff soon so we can get te best help we can.
thanks again jennyd
Hi Jenny D - sorry to hear you are getting those nasty frame by frames. Thanks to Kira she clarified (by recommending that document) what that nasty visual sensation was to me as I had not had it until this year. I felt like I was going mad when I was having them, though they didn’t last too long. They just make you feel so disorientated and not quite with it - it’s as if you are in a different world looking out.
Migraine symptoms just keep changing for me - although my headaches have reduced a lot recently I am still getting the strange visuals and interference with my speech and thought processes. I went to the train ticket office to renew my months season pass on Monday - it took me 4 attempts to say the destination and return station - I’ve had the same problem today - it’s so annoying and frustrating.
Good luck with your appointment.
Thanks so much Mrs G, ive just come back from a beautifull restful weeks holiday and happy to say that after being on verapamil for the past 4 weeks i’m for some reason NOT ROCKING, hoping it last I’m going to answer these emails and stay right away from the computer for a week or 2, just to see what happens, I havent used my mobile phone while away and just checked it and had a strange sensation running through my head and ears so i’m going to aviod the phone as well, sounds silly but some times between the fluro’s and all this modern tech stuff i wonder if one of them may be my trigger. so I’ll let you all know of further change, p.s this verapamil dose have some drawbacks , very vivid violent nightmares and some the odd pannic attack which i thought id rid myself of over the past year or two. anyways must go for now , chat soon, thanks jennyd
Good to hear you are getting some relief with the new drug - I am sure the weeks holiday was helpful too. Hope you have continued improvement by the time you log back in to read this!
Jenny,
The eMedicine article that Adam has posted is excellent, and it clearly describes that migraine associated vertigo–which is often called migraine associated dizziness–isn’t just “true” spinning vertigo. It’s often floating, imbalance, feeling pulled to one side, that sensation of walking on couch cushions, etc. The orginial article recommended verapamil as the first line treatment. Then it was re-issued in June 2006, and suddenly topamax, which is heavily marketed by OrthoMcNeil was the number one drug, and recently I re-read the article, and verapamil is back on top.
Migraine prophylaxis drugs aren’t perfect, they get FDA approved in the US if they lower the frequency of migraines by half–the topamax ad shows a graph where the average migraines per month were 6, and the person on placebo got 5, and the person taking topamax got 4 (a reduction of 1) and the ad trumpets: “50% reduction in migraine!”–great, one less, if you actually read the graph.
So, it sounds like you’re better, but still have a few lingering symptoms. I find the phone can set me off sometimes.
I’m just glad the verapamil works for you.
Kira
Hi every one well i didnt have to wait to visit you again, it seems my remission from rocking was only short. spent a day being depressed about it and then realised this will take time , at least I’m able to live aliilte better on this verapamil as it lessens the severity in some way.
thanks for all your imput and i’ll let you know of any further changes if any.
started seeing aura again yesterday and woke up with it this morning, I’m sooooo confused. maybe it’s just all i’m my head.
from jen.