Hi, I am newly diagnosed with VM. 1st OT I went to thought of it immediately because he too suffers from it and recognized the symptoms but some of my symptoms didn’t seem to really fit so he became unsure and sent me out for more testing. Went to see a specialist OT (specializes in dizziness) and he assured me that having some symptoms that others don’t have doesn’t mean anything. He suggested I check out this website and gave me some other reading material that was helpful. My episodes were 2 or 3 times a year but recently (I have been under a lot of stress) they have been coming on about every 2 months or so.
My symptoms always happen in the morning before getting out of bed. Sometimes it is true vertigo and I have to just lay there until it passes, other times it is extreme dizziness with or without unsteady gait. Sometimes I have to get back into bed and just wait until it calms down other times it seems to calm pretty quickly and I can at least function although not optimal (I stay at varying degrees of dizziness) It will usually last 4-5 days with the first day being the worst and getting progressively better each day until day 5 where I am just a little dizzy most of the day. I have had it last a month and a half with being just varying degrees of dizzy usually getting better as the day goes on.
I have headaches but not always with the dizzy symptoms and not usually debilitating just very painful or annoying. Was 4-5 times a week, but I have found magnesium to be helpful in lessening both the severity and number of them. It has done nothing for the dizziness though.
Confusion or better yet the inability to organize my thoughts is a big one for me and always accompanies the dizziness. Diarrhea is also a symptom I have most of the time when having an episode. Also Tinnitus always there but much worse during an episode.
A bit longer than I anticipated but I guess I just needed to get it out! Since mine do go away and I have weeks and even months of being “mostly symptom free” I feel lucky compared to many of you I’ve read about on here. Thanks for the chance to tell my story. I’ll keep digging through here to glean what I can.