Any advice is always welcome. I’ve been a long time lurker and this site has been great source for me as I’ve walked my path. I am lucky as my SO is a physician’s assistant for a family practice. She has been very helpful and understanding through this process.
My path, like most, started as a ‘cold’. Decided to go home early from work since I didn’t feel good. Next thing I know, I’m puking out my car door on the side of a rush hour interstate as my head spins round and round. Somehow made it home in between episodes.
Spent the next 2 weeks isolated in my house trying to recover and schedule Dr appointments trying to figure out what was going on. (MRI, ENT, etc) Initial diagnosis was Menier’s. Followed a strict regimen of reduced sodium. Did that for 7-8 months with no real improvement. Tried changing meds, additional exercises, etc. My SO made me an appointment with a Menier’s specialist in Denver. The appointment was 4 months out, but at least it was scheduled. A few cruel tests later I was told it’s VN and not Menier’s. One puzzle piece figured out!
What is weird about my VN is that it never got better. I never had an ‘episode’, but I never felt ‘normal’. So back to more doctors and changing up medication…
I don’t have a traditional ‘headache’ or head pain. I have fatigue, eye strain, confusion. And not just episodes. I have this 100% of the time. Once we began thinking ‘migraine’, I began working with my GP on standard migraine meds as we were waiting to get in with a migraine specialist.
After hearing my history, the migranie doctor get me pre-approved for Botox and we begin injections (May 2018). That stopped the overall confusion and fatigue within 3 days. It was amazing to actually feel human again for the first time in 2+ years. We are still working to dial in the exact dose as it wore off a week early this round. I’ve only had 3 sessions.
I’m a big fan of natural solutions to most health issues. For me, this isn’t able to be addressed by doing just that. The supplements, diet, and exercise definitely help. I’ve felt a difference when I’ve accidentally run out.
So with that. Great meeting everyone and looking forward to contributing.