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Head heaviness

Any Compression on the neck such as when slouching on the sofa or studying a mobile phone will make matters worse. Nothing to stop you trying to improve your posture, by being more aware, immediately. No need to wait imaging. It’s more than likely any misalignment is a result of MAV rather than anything structural. Imaging wouldn’t help with that. Just trying to stop poor posture becoming a habit and you’re half ways there.

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Normally, I would agree with this but I have hurt my neck in the past and have also literally popped it out of place. I do need imaging to check for proper alignment. The poor posture doesn’t help. After I worked out today, I followed it up with a neck and shoulder yoga release routine to try and lengthen and loosen the spine.

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Ah well I wasn’t to know you’d previously had a neck injury. I’d assumed you were referring to something associated with MAV. Many MAVers trace their symptoms back to Neck injuries or some assault on the spine. Whiplash is a common culprit. Maybe your imaging will produce a root cause then.

Great that you can use yoga in that way. I’m sure people who do yoga regularly benefit greatly in many ways. Must admit though the after I worked out today phrase makes me wonder. I’m not too sure where that comes in the lifestyle changes for MAV pattern of ‘no unnecessary exertion’. But each to their own. There are various schools of thought on exercise. Some advocate ‘Pushing Through’, some don’t. I suspect much depends on severity which seems to vary immensely. The more severely afflicted MAVers (like me) pushed through (in my case as instructed by VRT therapist) until they collapsed then thought again.

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I do my “normal” workouts to benefit me and my other chronic health issues. I can’t stop completely or it’ll exacerbate other things I have going on.

The yoga was nice. Made me focus on my breath and positioning of my body. It was almost meditative, which I should get into again. It calmed down the stress I put on my body from my more intense workout.

Hi all,

I saw the heading and have been reading everyone’s posts and thought I’d add my own perspective seeing as I have some other weird things that go along with the head heaviness. Mine is a feeling of extreme tenseness which runs across the very top of my head and down towards the tops of both ears. Whilst the rest of my head feels okay, the heavy part feels extremely tight and when that happens, I know I’m in for a bad time as my dizziness and vertigo sensations double in intensity. It’s never painful, just always an immense feeling of pressure. However…other things can also trigger/increase this heaviness such as if I have to open a difficult jam jar top, strain to reach for something or when I’m out in the cold and my head feels tense when shivering. Then my pins and needles kick in immediately and my vertigo spins and sudden drop like feelings become quite pronounced! The vertigo is brief but I certainly know all about it. My MRI scan was normal and I’ve been told I’m not symptomatic with BPPV at this time.

I just wondered if anyone else has had these things seeing as they are a bit ‘out there’ in terms of symptoms and I find them frightening. I sometimes feel like an octopus, with a rock for my head and cotton wool for my limbs. I’ve tried asking all the medical professionals that I’ve seen but just get the standard response: 'we don’t know, it’s probably (you’ve guessed it)…stress and anxiety!

I’ve just passed the year mark with PPPD and MAV and can’t believe that what started out as an inner ear infection has left me with a condition where my brain is literally disabling me. I’m definitely losing hope, even though I tell myself that I’m sure things will get better in time. I take my hat off to everyone who has been dealing with this for a considerably longer time than myself - I honestly don’t know how you manage it.

Allyson x

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I get pressure when I try to open stuck jar lids too. Straining won’t do us any good.

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Can I just ask if you get additional dizziness/vertigo with head straining? This seems to happen to me quite frequently and I have yet to work out why.

Sorry to hear of your struggles. Yes I can relate, since MAV hit me I have a constant head pressure and pressure in my right ear. If I bend over the pressure in my right ear increases like it might explode. I have noticed now that the dizziness is less prominent thanks to Ami, the head pressure and spaced out feeling is more noticeable. I have been coping with it all pretty well. I recently went on a food tour with a friend in the city, I must admit I was quite scared as I didn’t know if I could handle it. I had some discomfort but enjoyed the day, 6 months ago i would not have been able to go at all. Thank you Ami!

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Have you tried any meds? I have always been anti meds but because this condition and the vertigo was so bad, I tried Amitriptiline. It has really cut my symptoms down to be more manageable. I am making 40mg for 9 months now. It’s really worth a try. For me exercise and yoga was a no go, ramped up my symptoms no end but everyone is different

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I do, but only very briefly. The straining will just develop into a headache, which I’ve got now since I did open a tight jar earlier. Also, looking down and chopping veggies gives me a bit of dizziness. It’s probably a combination of the angle of my neck/head and the force I’m exerting.

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Yes, very normal for me.

Yes, straining can do it, I just do very gentle exercise these days. I have air hunger at times or numb-feeling breathing, sort of like getting the wind knocked out of you, coldness feeling without being actually cold - I would consider these symptoms “out there” and pretty rare even with MAV. But, I’ve had plenty of medical testing to know there is nothing else going on, its just another migraine symptom along with slurred speech and all the rest…

This is normal too, yes it is incredibly difficult to make progress. Hopelessness is a big part of having MAV. All you can do is keep trying and make an effort to reduce life’s responsibilities if possible. Find happiness in tiny moments. Keep trying new treatments.
You will get better!

Erik

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Not sure what you mean? Opening a jar makes dizziness worse? Sitting head bent forwards over Iphone reading yr emails? Anything like that can do it. You got to remember in the body everything is joined up. This really came home to me when I broke my left shoulder. The most painful thing to have to do with a broken shoulder I found was sitting down/getting back up from using the toilet. Recently a physio was massaging the right side if my lower back very gently and without pain then suddenly I could feel -no pain just aware of its path - the entire length of one nerve somehow going up my back and down my left arm into a particular finger. Sensation passed so quickly not sure which finger but, as you see, we are all joined up.

Check out the various pathways of the trigmenial nerve which is believed to have high involvement with migraine.

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I used to get a big relapse of dizziness if I went down on haunches. This would increase my dizziness for two days plus.

In my case I believe this to have been related to the mild Hydrops I probably have in left ear. The additional cranial pressure plays havoc with the hydropic inner ear. It was temporary though and settled again within a few days. My ear Hydrops has eased a lot since then and I don’t get the same issues although it still causes me tinnitus as there is still some pressure.

We’re getting a bit off Topic here though.

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Thanks all for your kind and supportive comments. I had been hesitating to post in these things related to the head pressure for fear of sounding like a ‘looney’ but it’s good (although not in terms of having these awful things) to know I’m not alone.

Allyson x

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