Jess, no need to apologise - this ranks as one of my worst experiences during worst of the condition - if you get this more than once I only have very sincere sympathy for you and get this when not on meds?!: wow. I believe that did happen to me in the very early days when I couldn’t move my head or eyes at all and had to stare at the wall for up to 14 hours without moving or face extreme discomfort.
The answer to your question is I can’t remember exactly, but don’t think so. HOWEVER, remember I was on Amitriptyline at the time of THIS incident. I can only imagine the additional weird feelings I would have got had I not been taking that vestibular suppressant at the time.
Outside of this experience, I remember many times walking through my local tesco’s getting very weird sensations from my legs - one felt heavier and longer than the other - but nothing was physically wrong with them. This is your brain mixing up information it learnt when everything was well.
So in conclusion, Jess, I would not be surprised if you get strange feelings from back or legs during a vestibular attack. This is probably some kind of hallucination (like you sometimes get when the world visually seems to rock back and forth) as the body tries to work out why you are having these strange feelings and correlates it to the wrong thing: oh I’m experiencing this so it must be because this is happening (in my case several time one leg had got much heavier!)
Looking back on this event now I can’t believe how much better my balance is these days (balance is almost permanently back to normal now) which I hope gives hope to anyone reading of this experience that you can get completely over an attack like this … but yeah, this was over 6 months ago.
I remember being very disappointed that I’d had such a violent attack whilst still on Ami and this started to make me very suspicious of the diagnosis as I wasn’t comfortable with having been on a migraine preventative successfully for so long yet it didn’t seem to prevent what was a very violent attack.
I’d better point out, as you know in my case, something was wrong with my ear (I have a diagnosis of fistula and secondary hydrops) - it was leaking periodically and looking back I now believe this must have been caused by a large acute leak which left the ear without sufficient fluid temporarily - I suspect the magneto head is the result of crystals ‘dangling’ without sufficient fluid in your ear, pulling on the movement sense hairs. Once the wound heals again, fluid builds back up and the neurons recover from the trauma (which apparently takes a few days to two weeks), you are back to ‘normal’ again - for the time being. Unfortunately there is a risk the higher pressure in the ear (the hydrops) will force open the wound again and repeat the cycle. It’s my view however that this vicious cycle eventually calms down for most as the wound scars over and the maximum pressure lowers in response to less leakage.