hi all, im new to this site and this is my first post.
Been suffering with what i now know is MAV for 3.5 years. Over that time the condition and symptoms have changed from no headache and dizziness for 3 months, to constant headaches no dizziness, extreme sensitivity to noise, brain fog, disassociation / de-realization (maybe the worst symptom),more dizziness, plus general feeling of not being myself / shitty - sure you can all relate.
Add to that the extreme anxiety / depression / moods, which i have never had before all this its been a truly horrible experience.
Seen 4 neurologists / loads of GP’s, ENT’s, Psychiatrists, Therapists .
Diagnosis of NDPH, Chronic Migraine (Vestibular Migraine - my first ever diagnosis), Depression, GAD, Burnout and prob a few more i have forgotten.
Treatments of Topirimate, Pregablin, Amitriptyline, SSRI’s, Nerve blocks, Botox, Amovig, Physio, Chiro, Acupuncture, diets (Keto), Cefaly
Still not sorted!
I came across MAV in sites like this a few weeks back and it convinced me that my first diagnosis of MAV was correct, although the treatment wasn’t (just from a normal Neurologist). My symptoms changed so much over the 3 years that its no surprise that the pieces wernt put together.
Dr S Anyway, I had a consultation with Dr S yesterday, who really understood and explained how the anxiety and moods are linked (and not my reaction to it), which was so good to finally have someone confirm i haven’t gone mad! He has put my on the C’s diet and has prescribed a blood pressure med (not sure which one yet), which i start next week.
I emailed Proff Luxon too and she has just got back to me offering me a consultation (Skype). I am tempted to have that as well for a second opinion (or 50th), but also dont want to confuse issues anymore and be torn over which one to follow.
Does anyone have a view on who they prefer or if seeing both is overkill. Appreciate it will be subjective etc, but any thoughts who be appreciated.