I woke up in the middle of the night when I turned over and the room was spinning. Didn’t matter what way I turned, I had it on both sides.
When I saw the PT for the Epley maneuver, she did the Dix Hallpike, and she noted that I had the movement in both eyes. Only when I lay down.
I never had a spinning sensation while upright. Only in bed. Or sitting and putting my head in my hands as if between your knees.
From my understanding mine had to be BPPV related, as the epley worked. My first episode I had it for 14 nights. Then the epley. Then the second time, I knew what to do, so I had the epley done the same day, and it went away.
If it is related somehow to the brain not firing correctly due to the BPPV, I sure wish, someone would tell me how to solve it. now my dizziness, is just plain dizzy, and its best when standing, but there all the time. ALL the time. Worse when laying down.
I dont have a migraine though…?
I have an appt next week with the cardiologist, I also have a possible POTS diagnosis. I dont think I have it though, as I was borderline for it, and my heart rate while standing is only 90-104. Has to be over 100 while standing for pots. However generally its 96-104.
The doc that said Mav only gave me 3 choices of meds. Propranolol, Effexor or Topamax. Tried Topamax already.
Good news is, these two meds also are prescribed for POTS. However the propranolol is a MUCH lower dose.
Not surewhat type of VRT to do. Haven’t really found anyone around here.
One of the things a lot of us had to learn (from reading science based articles, or from the great info on this website) is that it’s very important to distinguish the term “migraine” from the term “headache.” They are not the same thing. Migraine associated vertigo, also known as migraine associated dizziness, often occurs in the absence of headache.
Quoting Scott in “What is migraine?” - (first article on the top of the board)
“First, the biggest myth out there is that migraine is some type of headache which we all know is just plain wrong. It is in fact a complex neurological disease that affects the central nervous system. Headache is one symptom but migraine almost never consists of head pain alone and in some, there is no head pain at all.”
I was confused by the Vertigo part. As I know mine was BPPV related. When I research the Vestibular Migraine, all it talks about is Vertigo as dizziness, not other types of dizziness. Even the Thain website when it talks about rocking, and regular dizziness, it makes it sound like its something else and not MAV. To many contridications to keep up with. One term Hain used was pyschogenic dizziness. Which he makes it sound like a totally different thing.
I will know more next week. Then it will be time to just try something. At this point, got nothing to loose. Propranolol is the rx of my oto’s choice.
I had a meeting with my consultant neurotologist on Friday, and remebered to ask him this - “why is the dizziness 24/7; surely the migraine mechanism isn’t ‘active’ all that time…?”.
And his reply was (paraphrased), “There is constant movement, no matter how subtle, within the body and limbs and head, etc. With a ‘normal’, non-MAV brain, all this movement gets filtered out and ignored as ‘white-noise’ (i.e. it is considered un-important and isn’t processed). But an irritated, MAV brain, will constantly pay attention to this and attempt to process and make sense of this movement, and this can contribute to the feeling of 24/7 dizziness that is felt…”.
Not sure whether this sounds plausible to people here or not, but just thought I’d pass on the information…
Tony.
And a neurologist’s answer. One that figures. Sure resonates with me. Yep, I would go along with that as a sensible hypothesis. Would perhaps even account for PPPD. Might be archive but it’s good stuff. Helen