I know you have probably read about the Duke study, and I think that it may begin to provide the answer for the chronic, and even sometimes fluctuating symptoms that people describe here, and the doctors think could potentially provide some insight and answers to migraines. Some of the drugs used to treat the symptoms of high pressure are also used successfully with MAV, such as amitriptyline or the anticonvulsant topiramate , Effexor and Diamox.
High and low csf pressure have many of the same symptoms, and for those people who have had a spinal, any surgeries of the head or spine, or any injuries to the spine, may want to be checked for csf leak. Unfortunately, the normal range of csf pressure is not well defined, and what they are doing at Duke is doing an LP and then testing whether added or decreased fluid has any impact on symptoms. I can speak from my personal experience that the results of having fluid added, that it was truly an amazing result of how much clearer my head and vision were after having fluid added. Some people have actually had their hearing restored on the table! I honestly didn’t know how bad the symptoms were until I felt good again. Way better than a good day with MAV!
As you can see from my signature, I have been having trouble getting the patches to hold, the blood or glue they use is temporary (lasts about 3-4 weeks) and is suppose to begin an inflammatory process to get your body to create its own long lasting patch. My body is not cooperating, so I feel GREAT for 3-4 weeks, and then back to MAV brain again. My patch results are not typical, most resolve on the first try. Since I have been through 3 patches, and three periods of feeling better, and then worse again, I have a very good personal understanding/experience, about the difference between what feels normal and what does not. If my pressure was high, I would be able to control it with some of the above mentioned MAV medications, but those would (and have) made me feel much worse.
I do not believe that this theory of csf pressure competes with any of the strategies discussed on this website. I think it goes hand and hand… the csf theory could just provide a reason for some brains to be more susceptible to migraine and imbalance than others. There have also been some threads about Lyme disease, and I think it is possible that Lyme could also be a factor causing MAV symptoms. There is no “cure” for MAV, doctors don’t understand the root cause well enough to suggest a “cure”, they just manage it. I hope doctors continue to look for the causes. I am glad I found the cause of mine, and still hold out hope to get a long term patch!