How do you feel about ChatGPT for therapy? Are sites like this still useful?

Sometimes when this site is quiet I wonder if people are using ChatGPT or similar to discuss their symptoms and get answers?

Do you think the site still has value and do you think reading about and talking to real sufferers is still superior?

Sign-ups still seem reasonably healthy, but sometimes it seems like there aren’t many newcomers introducing themselves :cry: (New here, let me introduce myself :handshake: btw! :slight_smile: )

btw, has anyone got any feedback on DizzyBot?

I’ve never tried chatgpt for anything, I’m pretty strongly anti AI for most of its uses unless it’s being used in medical situations like to interpret scans for example. I don’t think a machine can equal a human being for therapy uses. I think this site is most useful as an archive of information where you can come and look up something you’re curious about. Having info all in one place is better than having to search through various web pages for specific info. It’s not very active these days and people who get treated successfully don’t often stay active here which limits the site’s usefulness. So it’s most useful as an archive so I think it should stay around even if just for that usage even if few people still talk here.

2 Likes

Thanks @MissMigraine. Agree with your sentiments that patient information should be ā€œhuman firstā€. The site will not be taken down if I have anything to do with it and hopefully activity will spruce up in the future.

1 Like

I’ve belong to a very active Facebook group for VM so it’s likely many people are also using social media sites to connect with fellow-sufferers. That said, I find the FB site to be mostly people, often newly diagnosed, asking the same questions over and over again. Which meds work for you? Have you tried this or that? And there’s a lot of general misery-sharing along with some questionable advice from unqualified people. The great thing about this site is the information provided is carefully moderated and there is a wealth of solid, helpful scientific information. I don’t think this site is well known, though, and I don’t know what, if anything, can or should be done about that. I very much appreciate this site and would hate to lose it.

2 Likes

I agree with the other responders…I suspect quite a lot goes on on the platforms I have no idea about - yes often whining and asking for medication to ā€˜stop’ it - on the FB pages anyway!! I followed 2 Meniere’s pages - one now defunct it seems, and the other just chugging along… Personally, I prefer a forum like this one, and it has a huge archive of information for anyone willing to read and learn. Personally, I only interact if I feel I can offer any help, but I still do pop by now and again to see how folk are doing. I also realize that I’m old and old-fashioned :face_with_peeking_eye:. If you can keep it going, I think there are still folk who can be helped, or at least discover that they are ā€˜not alone’, which in itself is a huge help, in my opinion! :sunflower:

1 Like

Agree with others. AI can provide some pretty amazing research, but it has no idea what its like to be miserable and dizzy. Being able to talk to real people about their experiences makes all the difference.

2 Likes

Even Hain is calling AI out now:

I use ChatGPT pretty much every day and work in a field pretty adjacent to ā€œAIā€. AI is good as essentially a search over the entire corpus of ā€œweb dataā€ outputted in clear, always-unique natural language, but is hardly a substitute for the lived experiences of other people.

I’ve discussed various aspects of my treatment with ChatGPT before, without really a whole lot of significant insight. Its worth noting that conditions like Vestibular Migraine and Meniere’s are on the more uncommon side without a whole lot of written first-hand accounts of living with the disease.

I’d even imagine that pages on this site that are accessible to the ā€œclear webā€ without a login were used in the corpus of text used to train ChatGPT. So in a sense it is useful for everyone (the robots included) for us to continue writing about our experiences.

1 Like