Hey guys! I’ve been having so much trouble with the trampoline/marshmellow floor symptom! It’s a relatively new symptom for me (two months or so) and it makes me feel SO uncomfortable I’m amazed how I get myself to do stuff sometimes because I just absolutely dread the feeling. It’s like consciously thinking about how to walk, one of the most simple things, 24/7! If anyone has ANY ways to relieve it even just for the tiniest bit please let me know!
Yeah, that’s a really crummy symptom. I find some relief while wearing more “minimalist” footwear (cushy insoles are the worst!).
You will get used to it and stop getting anxious about it. You will learn to stop reacting to it. I get this everyday more so in bad sleep days.
Can totally sympathise with you here. I used to get this an awful lot but alot less so now I’m at 50mg of Amitriptyline. Lastnight I did have falling through the bed type feelings and wooshy head on turning in bed. As @GetBetter says tiredness really impacts this for me too
Are you taking meds at the moment?
Avoid memory foam soles. Buy good solid shoes with solid bases, flat to the floor, low heel and wide enough to keep the entire foot in touch with the floor.
As @GetBetter says Try not to be over anxious about it. The best way to reduce anxiety about anything is to thoroughly understand whatever is causing the anxiety. You need to learn more about your condition. Once you do you can just think to yourself … oh that’s just feeling like that because of So-n-So’. Learn and remove the mystery. The ‘marshmallow floor’ feeling is because your balance system is compromised by the condition and your brain is receiving and placing too much reliance on messages from your feet in order to keep you upright.
Sorry but I feel I must correct you there. Walking is actually pretty much the most complicated activity your brain ever has to perform. Nothing simple about it at all. Nobody has yet penetrated the art of balance in respect to bipeds. It remains a mystery. Really we should fall head first with every step but we don’t. MAV is often described as a ‘migraine variant balance disorder. Helen
I agree with the others. Sometimes I am best going barefoot as much as possible. Wide base shoes only, I wear the Ugs slip on style. I definitely walk with a wider heavier gait than most. The anxiety will decrease some over time and exposure but this is one symptom that you never really get used to, only better at coping with. You are in good company walking on marshmallows, its one of my least favorite parts of MAV.
Trampoline floor is an awful sensation, I sympathise. I compare it to walking on a boat. Are you on any medication? From what I understand it’s the intermittent migrainous attacks that cause the brain to struggle with balance, and if there are a lot of attacks the brain will struggle to reestablish normal balance in between.
Whether one looks on it as ‘intermittent’ migrainous/vertiginous attacks or indeed ongoing, continuous attacks personally I don’t think the indications that the balance Is adversely affected, ie ‘marshmallow floor’ or indeed the actual dizziness itself will quit until the attacks are well controlled by some means or another ie meds, sorting a root cause. That’s where the migraine associated vertigo comes in. Helen
Repeating what’s already been said probably but totally sympathise it’s for me up there with one of the worst symptoms and a sign MAVs flaring up. You do have to come to terms with it though so your anxiety lowers. If you worry about it constantly you will feel like you’ve forgotten how to walk. Solid shoes are best any bounce in your sole will increase sensation or rocking feeling. It’s much easier for brain to calculate balance moving faster than slowly so if your out and about take a decent walking pace your legs may ache but you may end up with toned muscles at the end of it every cloud .
This is true and I also understand that when running the brain uses the ears less and the other senses more like eyes, joint angles etc.
I was never dizzy running.
Yes definitely. Tai Chi Instructor told the class that was why Tai Chi us so good for balance/stability because its uktra slow movements challenge the brain so.
I dread saying this because I can anticipate your next question but, somewhere in a medical paper quite recently I read that this is a very strong indication of ear dysfunction rather than brain. In fact I’m almost sure it stated that so many people who had had vestibular neuritis commented thus.
Can you find that reference Helen?