I have posted before on Bilateral vestibulopathy. I am hoping to see another neurotologist soon as I don’t trust my current drs diagnosis. First got sick in 2006 with waking up with vertigo and vomiting. I was told it was mold exposure and allergies, given steroids nasal spray. I remained off balance for months. Was helped with Prozac but my vision remained off. Light sensitivity, fluorescent lighting made me spacey, depersonalization and also horizontal blinds would vibrate as well as a host of new floaters in my eyes and little wispy things into vision.
I stopped thre Prozac in 2009 to get pregnant. I started noticing trailing in my vision immediately. I went through a lot of stress with my mom dying and had my son in Dec 2009. Went back on Prozac and immediately the migraines started as well as a couple bouts of quick spins. I got off of that and tried Zoloft… On day three I notified static in my vision and afterimages. The migraines started again and were daily. I stopped all medicine and asked my chiropractor who I had been Seeing for a car accident I was in while pregnant, to send me to a neuro. He said migraines and wanted me to take another med. I said no and kept searching. A years worth of daily migraines which would cause me to be off balance during the pre phase of the pain, I found a neuro who said basilar migraine and prescribed verapamil. Success, all migraines stopped except for the occasional menstrual migraine. A year later my blood pressure which is 90/60 started getting very very low so I weaned off. I did great for a while until I started getting dizzy while driving. Went to a neuro otologist who did eng testing and calories and said bilateral vestibulopathy. I did vestibular rehab and got better however now I am left with a strange symptom that scares me so much.
When I am in the car or even outside the car but watching a car move it appears to be jerking along. Almost like it is missin a small frame in my vision. Like a cartoon. It goes real fast, then slow, etc. in my peripheral it’s worse… I see the car then it disappears then comes back, like I am again missing a lot of frames. I also thik this is why my central vision looks weird when looking at cars… I can see the wheel/rim of the car stop for a moment and then start again. I am beside myself with grief and all I think about is not being here. I don’t want to live without having my sight. That sounds terrible, but it’s true. The drs can’t help… They have no idea what I am talking about and say optokinetic nystagmus, but I have recorded my eyes and do not have nystagmus and his wouldn’t explain why it’s in my peripheral which requires no saccades if I am looking at something else. Where do I go from here? Any possible suggestions of what this could be? Has anyone experienced this before? I don’t know if it’s migraine or vestibular. Before this happened I was experiencing a lot of blinking… I thought I had a tic. It was strange but I don’t think it was related. Can anyone relate or help?
