Ive had this now over 2 years and Im not better I go to work come home look after the kids etc etc Im not housebound now havent been in a good 9 months I feel grateful of course but Im midly dizzy all day everyday and get ‘attacks’ on top. Bed is the worse I lie down and feel like Im falling its vile like being pissed without the fun!
Im only on one medication amitriptyline and its helped maybe its helped me to cope more than help the dizziness I dont know at this point . My life isnt on hold now but Im 25 years old I hardly go out , cant get drunk, too scared to go on a plane etc etc it stops me living anyway.
How is everyone else I used to chat to sometimes on here? Scott how are you? I know youve had this a long time and help people but your still here and still suffereing I gather ? Ive given up looking for a way out think Ive accepted Im dizzy forever now anyway
i read your post outloud to my husband because our situations are similar
not only are we both blondies but i too go to work, take care of 2 children, am milldy dizzy/rocky 24/7 and laying down sucks! i feel like i’m rolling down a hill or in plane turbulence. i am only 30 years old but still young and have dealt with this for over a year. i also will get the attacks on top of it but haven’t since i started topamax. i’m trying to figure out if the attacks are actually the migraines and this other crap is something else? who knows?
i think acceptance is wonderful but i still don’t want too although in the back of my mind i know forever is a strong possibility. i tell my friends that i might live like this the rest of my life and mean it and they say “no way!” and they just don’t understand that it’s not going to just fix itself.
great job for accepting it, that is something i need to work on (gulp.)
Im only on one medication amitriptyline and its helped maybe its helped me to cope more than help the dizziness I dont know at this point . My life isnt on hold now but Im 25 years old I hardly go out , cant get drunk, too scared to go on a plane etc etc it stops me living anyway.
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Can’t get drunk?? What???
lol, I got drunk last week for the first time in 5 years, it was great! I have to admit, the buzzed feeling was so different than my “normal” dizziness. I just said screw it and drank more. I got up and went to class on time the next day :mrgreen:
Hi blondie…
I feel sad for you b/c your so young & i know the future looks dim. I am lucky i dont have to get up & work for a living…although i have a husband & son to take care of. thats enough work 4 me…
Ive been on Nortriptyline for 2 wks…i cant tell if its helping,but today was a good day. i had no headache or dizzy spells…just 3 or 4 loss of hearing episodes.
I believe i will be like this forever…although i have gone MONTHS without ANY symptoms. I am thinking it may be “seasonal”?..i really dont know. some days i feel so anti-social, i am constantly turning down dinner invitations…baby showers…BBQ’s…etc
Blondie,
I wouldn’t write this off as a forever thing. Yes, you may have MAV forever, but you don’t have to suffer forever. I would forge ahead and try adding another med to the mix, or perhaps changing it altogether…have you tried Nortriptyline? Others have said they didn’t get too much out of Ami, but got better with Nori…might be worth looking into?
Sorry you are feeling this way. There was a time Ifelt that way too, but I’m so much better now. I hope you find some answers and don’t stop till you get the results you deserve. It’s not easy, but it can be done.
Kelley
I feel the same way I just think I’m going to be dizzy, our stories r similar just I don’t have my own children, i still
Manage to go to work even though i feel 24/7 rocking off balance feeling, I’m 21 and have had this for 6 years. I to dont get drunk or even drink much as it makes my dizziness worst and laying down is horrible for me too.
I hope you feel better soon
you really won’t, you must be exhausted working and looking the kids and fighting this disorder. Do you have a neurootologist? If not try to get to one. try other drugs until you get a match. At 25 your life is only on hold for a bit. It should be easier for you to knock this on the head now rather than later. We all feel like this . It’s such a bastard , viscious disease but it can be faced down.
So sorry to read that you are still suffering. I agree with the others, this certainly doesn’t have to be forever. Have you only tried the one med? Might be time to start investigating some other options, maybe get a second opinion? Hang in there, things can definitely get better for you.
Hi guys Im sorry I havent replied sooner thankyou for replying means so much to me.
I just found out Im pregnant OMG Im still in shock this wasnt in the plan you know and its just happened maybe its meant to be but Im scared my hubby is over the moon though hope I get through this.
congrats that’s wonderful news…see your life is opening up. With the change in hormones your MAV may improve or if there have been recent changes…you know why.I do think now is the time to act and get to Dr S to help yu through the pregnancy…either way, you have a reason for living now…
Hi guys Im sorry I havent replied sooner thankyou for replying means so much to me.
I just found out Im pregnant OMG Im still in shock this wasnt in the plan you know and its just happened maybe its meant to be but Im scared my hubby is over the moon though hope I get through this.
but i too go to work, take care of 2 children, am milldy dizzy/rocky 24/7 and laying down sucks! i feel like i’m rolling down a hill or in plane turbulence. i am only 30 years old but still young and have dealt with this for over a year. i also will get the attacks on top of it but haven’t since i started topamax. i’m trying to figure out if the attacks are actually the migraines and this other crap is something else? who knows?