I hope I’m not going to jinx it now, but I can affirmatively say:
I’m dizzy free!!!
Now I know I may be a special case of ‘trauma-induced MAV’ (but I also know I’m not alone in that on this board), but I’d like to think this gives much hope to you all regardless! (after all many of you may have had some ear trauma but didn’t realise it at the time!)
I have had several weeks now of zero imbalance and dizziness to the point that I can’t even quite remember what that felt like.
Now I know relapse is possible, so one has to be a bit guarded at this stage, but heck, it’s a total change from the previous 33 or so months!
I did go through an interim stage for a few months of feeling less imbalanced and then having odd ‘moments’ … I occasionally still get those but they get fewer and farther between.
Oh and FYI I’ve been off medication for 10 months … so you may not need the medication to improve, as I’m way better than I was even after I gave up medication. However, for some it’s a quality of life trade-off … of course there was a long period when the drugs were necessary to block migraines.
I still have some mild hearing impairment and persistent tinnitus but I’m more used to it … it’s not got any worse. And I’m very hopeful that if my balance can be sorted out … so can my hearing … so here’s hoping
I should add that I used to have daily feelings of fluid in my ear when I got up every morning. I barely get that any more at all.
Hang on in there!