Hi folks. New here but have had a form of vertigo for 20 years on and off. Wondering if anyone else has had the same symptom presentation.
Mine is solely and only a false or illusory sensation of being āpushedā or āpulledā originating from my left side and to the right, though it can vary in origin and direction ā and has been just about every permutation at one time or another.
There are slight variations. There can be a general feeling of not being anchored to the ground, or a sensation I think of as objects not being tied down when you put the brakes on in a car ā my sense of where I am in space taking half a second to catch up.
Very rarely, I have the sensation of someone gripping my head and gearing up to fling me about.
Have had no issues with balance per se, apart from the normal decline with age. (I canāt stand on one leg with my eyes closed anymore.) I have never fallen, felt dizzy, had the room spin or felt like I was spinning myself.
Finally took the plunge and got an MRI, but no acoustic neuroma or ā this was an outside shot ā dural fistula, which might have explained my other persistent symptom, heartbeat synchronous pulsatile tinnitus. Which, unlike most presentations of pulsatile tinnitus, is high pitched, rather than a deep whooshing sound.
Originated in 2006 and was persistent for a year before fading. After that was mostly a day here and a day there, except for six weeks in I think 2014 and coming on strong again for a year in August 2024. Itās been fading lately and is mostly fairly faint, though I do have occasional bad days.
Would love to know if anyone has had anything similar.
I get this, and have had it since āinceptionā. Whilst my tinnitus is persistent, the pulsative stuff is not - and itās worse if I eat dessert or alcohol, or too much caffeine - or weirdly after long flights.
Over time it has lessened but over a period of years.
In general your symptoms would appear common to people on the board.
I am primarily a Meniersās Disease sufferer of long standing (over 50 years) - until about 8 years ago when it all came back with added bonusesā¦..like many symptoms which also fall under the MAV heading. Until fairly recently, I had the push/pull, and in my case usually a feeling of being thrown upwards ā¦..I call them earthquakes. I am also familiar with the moving car beside me when I breakā¦.. As turnitaround says, I think you will find others with similar experiences on this board. Tinnitus has been with me longer than I can remember, and now that I have added SSHL to my ābouquetā - I have also added Gregorian chants to the range of tinnitus on occasion! I hope you find some solace on this board - just know that you are not alone! p.sā¦age helps none of the symptoms, in my opinion!!
Iāve been fairly fortunate in that my vertigo has been more off than on since it first appeared in 2006. Also, Iāve been lucky enough never to have objective symptoms that completely incapacitate me for a period.
On the less positive side, my symptoms are constant, unless Iām asleep. It probably never completely vanishes, just gets so mild that I can habituate it. Itās not brought on or worsened by anything I do, but it canāt eased either. If I sit down or lie down itās still there, just as strong and just feels like Iām being pushed or pulled in the chair or bed.
As I said, last year itās been strong, eased off almost completely in the last few months, though itās there today. Today is the unspecified push pull ā omnidirectional and feels like tiny movements are magnified 50-fold.
Iāve come to think of the typical presentation as that my brain thinks Iām perpetually at the beginning of a fall, and is alerting me to correct it. As a result I can get swollen ankles and muscle cramps from unconsciously putting too much force on my left leg to āstabiliseā myself.
One type of relief that does work for me is a walking stick. (Outside the house I more often use an umbrella, so it doesnāt look like Iām using a walking stick for fashion purposes. I donāt limp or walk slowly, so people may think Iām taking the piss.)
The walking stick isnāt to stop falls, but itās enough ballast to convince my brain that I canāt possibly be about to fall over, and the false sensation of movement is greatly reduced.
p.sā¦age helps none of the symptoms, in my opinion!! 