Had that. Itās now gone. (ie the Hydrops reduced and possibly your body reacts to deficit in perilymph by increasing CSF pressure which impacts the ear). The hydrops is aggrevated by blood pressure, and itās very obvious when you lean over.
I still get tinnitus, but no matter how I lean over, it no longer increases.
ICP - Intracranial pressure.
Wheres the plf post surgery advice then?
It mads as i obviously try to piece the piecies of the puzzle together always but just from reading some of hain about plf article. ā¦ he mentions there could be opening in temporal boneā¦ well i then think i had a head trauma and fractured temporal bone on the that sideā¦ could this be it i wonder?? Did the skull / temporal bone not repair properly? ?? I was told fractures to bone heal within a couple of year. My accident serious RTA was a about 15 years ago. Let me know if you find any info on this. I have heard of post traumatic menieresā¦
Iām sure post traumatic menieres (or call it SEH?) is quite common. And nothing to be too worried about. Once it starts healing, it should burn out.
I have read about a diver with a PLF injury and it took 10 years for things to resolve.
Yes, you should probably get a CT scan if you are worried about a bone fracture. Thatās probably a much better thing to do than an inner ear injection. But after 7 years would you still have a fracture?
Iām going to say that an inner ear injection sounds totally Victorian.
I will PM you my doctor. Go see him for another opinion. He suggested I have a CT too, but I simply waited and didnāt need it.
Post PLF surgery advice is mainly to avoid physical aggrevation - keep head up on pillows at night and donāt lift heavy objects (definitely DONāT do weights at the gym!!)
Well once i feel healed it comes back!
Perhaps the quick drop attacks ive had ove the last year are tumarkins attacks and that some say is usually towards the end of apparent meneires. Who knowsā¦
Yeah thanks pass me the details. Yes im abit out of my depth when it comes to bones and fractures etc but all i know is i had fractures on that side and perhaps it didnt repair properly?? I dont know how a bone fractures or holes etc causes such problems ā¦ i know the temporal bone etc houses the ear or does it not??
The injection is not a permenant fix but could help reduce symptoms i think. Who knowsā¦ but i just cant go on like thisā¦ i cant wait forever to get the fix. My life is just being wasted away. Anyway yeah speak soon ā¦
Make sure you are optimising medication (its only temporary - I took it for only 1.5 years) and the diet. The 6Cās works for SEH (or whatever you want to call it 
)
Iām not nearly as informed on all of the varieties of inner ear issues or MAV components as James, (a relative newbie by comparison) but after reading through the commentsā¦ the one quote above really struck me and would make me question the physicians education / experience on the matter. It has been proven by all the top docs that dietary changes make a significant difference.
I wholeheartedly agree with James that I would question the injection also. If your dr has not suggested Amitriptyline, please ask them about it. It is one of the first āgo toā drugs for treatment with an incredibly good track record. I wouldnāt band aid something that can be treated effectively with combining a proven medication and the bodyās natural healing mechanisms.
If you chose to have the injection done, please do keep us updated on how you handle it and how your recovery goes! We wish you the very best and would love to hear that you have had great success!
I did not read all of the comments. Iām supposed to be working. I had a horrible first few months of 2018, then had the steroid injections. I felt a bit better after the first one and so much better after the second one that I didnāt need the third. It was such a relief. I did not have any problems with the injection. However, I donāt think that ear has much left in the way of nerves, 90 percent hearing loss. They do make you wait a half an hour in the chair they give you the injection at to make sure youāre okay. I havenāt had any horrible spinning episodes since Iāve had it. I do still have occasional āminor dizzinessā though. If I did my exercises more religiously, I know it would help.
Vestibular therapy helped with my nystagmus.
Iāll add that my husband took me to the first injection appointment, but I was able to go by myself to the second one.
Okay, Iāve now had time to read through the comments.
Iām surprised the doc said diuretics donāt work. Though I shouldnāt be after some of the doctors Iāve encountered.
It really helped me. My former ENT prescribed a diuretic when my fluctuating mild hearing loss and occasional spinning dizziness from my right ear first started 23 years ago, around age 38.
The diuretic levels out the fluid in your body. He said Diazide has been around for 50 years, no side effects. My pill bottle says Triamterene-HCTZ 37.5-25 MG CP. You need potassium if you take a diuretic as it gets depleted and can cause problems with dizziness, lightheadedness, fogginess.
Over the years Iāve had three neurologists for atypical migraines and Meniereās. Gabapentin (Gralise) at 600 mgs works for me now for headaches. I have varied it from 100 mgs to 900 mgs over the years depending on symptoms. Neurologists were okay with me doing that as long as I went up or down gradually. My primary care doctor says some people go all the way up to 1700 mgs.
An ENT referred me to a different ENT when my symptoms flared early 2018. He said āyou need to see this guy, heās the best. He had a fellowship with top doctor in the United States.ā
New ENT doctor said I should think about doing the steroid injection. He said I am already on a path where that earās nerves, etc., will cease to work soon and my body will slowly compensate. It made no sense to him to do something as destructive as gentamycin to relieve symptoms. He also said there are awful side effects and recovery takes a long time.
I was not able to work at that point so said yes to steroid injection. It was worth a try. Second shot and six vestibular therapy appointments helped tremendously.
The shots had to be given one month apart and you could get three total. I only needed two. I have since learned itās a pretty standard treatment in my area. San Francisco, California suburbs - close to Stanford Hospital.
Amitriptyline - Ive had problems for 8-9 years and never been offered or given this.
The main med is pregabalin. It used to help but doesnt as much now so weening off them.
Thanks i will do.
Gentamicin is no longer recommended by UK doctors. I think thatās totally out of the question. It leaves people with permanent disability.
You really have to be careful what you read and what you believe: even Hain once hailed Gentamicin injections as close to a cure. Whoops.
Having a steroid injection in close to a dead ear is very different from having one which is mostly functional and has the potential for significant recovery.
Ask the doctor exactly what they think this will do to the inner ear and ask them to explain how it works. If they canāt answer that question, do not have the procedure.
In any case all Iām suggesting is getting a second opinion.
Itās given pretty standard for migraine prevention and also long term chronic pain but itās an antidepressant by class. I wouldnāt imagine it would be offered to people with menieres and guess Pregabalin would be stronger as painkiller.
Actually thatās not the case.
Itās one of the best drugs for vertigo in general.
It absolutely is prescribed for āhydropsā (a broader term than Meniereās).
Amitriptyline has very useful properties for all sufferers of vertigo, nausea, anxiety, insomnia and dizziness, regardless of the underlying cause.
It is far from only used for depression and āmigraineā (whatever that really means).
I had an intratympanic injection of prednisone
After hearing the doctor describe what it does, I agree that no one should get a gentamicin injection.
On a side note, he gave me a prescription for Valium to take when a bad spinning attack happens to see if that would help. Since the steroid shot I havenāt had a bad attack so canāt comment if Valium will help. I think it will help when I have a minor spin or two and start panicking that I wonāt be able to function. I still have a hard time controlling that emotional panicky feeling if I think Iām about to have an attack.
Yes anxiety is a huge problem. So good to hear the steroid injection helped.
Hi do you mind me asking how long ago you had the injection? Was it just one intratympanic steroid injection? How did you feel straight after the injection?
Hi. I had the injections in April and May of 2018. I didnāt have any reactions at all, but my doctor said quite a few people do. Have someone go with you to your appointment just in case you canāt drive home.
It was not an immediate fix, it took a while to take effect. I couldnāt tell if the first injection helped or not because the weather had changed. Barometric pressure and rain give me problems and because it had stopped raining I wasnāt sure if that was the reason I felt better or if it was the shot. After the second injection I havenāt had any major attacks. Itās not a magic fix for everything, I still have some problems; but it did resolve the months of suffering what Iād rate as a 6 out of 10 level of symptoms. A year later Iād say Iām at probably a level 2 now.
I googled and found this article from 2017. I would stress that if you still have hearing in your ear, do not get the gentamicin. Ask what it is they are injecting as my doctor said it would take a few months of bad side effects to recover after a gentamicin injection.
Steroid injections into the inner ear may be safe for treating MĆ©niĆØreās diseaseā¦
](Steroid injections into the inner ear may be safe for treating MĆ©niĆØreās disease)Injecting steroids into the space behind the ear drum may be a safer alternative to injections of gentamycin for treating MĆ©niĆØreās disease. This disease is marked by severe attacks of dizziness and balance problems.
This NIHR-funded trial randomised 60 people with MĆ©niĆØreās disease who experienced severe attacks of vertigo and had not responded to standard treatment. They were randomly chosen to receive either the corticosteroid methylprednisolone or the antibiotic gentamicin. Participants were followed for two years.
Both were very effective at stopping or reducing symptoms by about 90%. Few side effects were reported in either group.
Gentamicin works by permanently damaging the inner ear function that is concerned with balance, and rarely can cause deafness. Because of this, specialist healthcare professionals may prefer to use of methylprednisolone instead.
I guess I should have quantified that by adding in āas a matter of courseā. Iāve always thought standard menieres treatment was Betahistine (Serc), diuretics and low salt diet but obviously not.
Unfortunately it seems not alot of people know that. I had severe episodic vertigo for twelve years and I was never offered it. In fact I was told by several different GPs and three different ENT Consultants there was nothing I could take, except Buccastem for the resulting sickness. And it seems neither has @Chawnz been offered it over the course of 8-9 years.
Itās brilliant at low dose for chronic pain long-term. A common use. Helen
I found this article too.
Ah so the injection is into the middle ear, not directly into the Perilymph? And the drug is absorbed via the semi-permeable windows of the inner and does not involve a breach of the inner ear windows.
That makes me feel a lot less concerned (!) but itās still less conservative than the oral medication route?
Errmm not sure. Think its a needle that goes must be to the middle ear? 
Have a look and let me know what you find. Extremely safe procedure they say.