Yes your right. I was never offered that med. i did take buccastem years ago but stopped and then had pregabalin for years since. So whats going on with your symptoms? Had that injection atal? How are you coping etc?
Thanks for your response. Hope your ok. When you say your at level 2 out of 10. Is that meaning your not feeing good or you are? Yes its not the gentacmin version. So it will be what you had. Thanks for your reply.
Yeah its funny you mention barometric pressures as i feel like that too. I used to get a bad episode once a year but it was always in winter when temp changed. I think its down to ear being very sensitive and like i can get up and ear start pulsating and make me feel crap. Yes true its to treat the symptoms i think. It wont resolve it all i dont think as we all need to get to the root cause of the problem i think.
Was you walking after the injection? As i got to go london for mine and well we all hate busy crowds when having problems. Thanks
I had no problem walking. I felt the same as when I walked into the office.
I am not ānormalā so I have to call it a 2. I feel better, but not my best. My bad days are nothing like they used to be. On a bad day I can still do things like work on the computer and cook and drive, I just have to take it a lot easier for a day. Most days I feel good and can do whatever I want. No ladder climbing or riding amusement park rides though. I was able to keep up with the tour group on 2-mile walking tours of colleges with my daughter this past summer, then two more tours just recently. I am 61 so I have to add the qualifier that I canāt be compared to someone in their 30s or 40s.
I have Meniereās Disease, and from your description I donāt think thatās what you have.
Before the shot I had been feeling bad for months and only improved slightly with time.
The vestibular therapy has helped with balance, but I can get wobbly if I move too quickly. My brain is still rewiring. The therapist said it takes a long time, just keep doing the exercises.
I frequently cannot lay on my right side or will feel dizzy (bad side). I have an adjustable bed and keep the head section raised when sleeping. Much easier than piling pillows and itās better for my neck and back. Allergies and the weather affect my ear too.
We get conflicting advice on treatment between doctors so we are always second-guessing things. Best of luck with your injection.
When you go in for follow-up after the shot ask the doctor what they think about amitriptyline or nortriptyline for your condition. 20 years ago when I was complaining of headaches with vertigo and didnāt know it was Meniereās yet, I felt awful when I was taking nortriptyline so I stopped. Gabapentin helps with nerves so that might be worth a try too. It canāt hurt to ask what they think. I also take one low-dose aspirin every morning for the same reason as someone at risk for stroke or heart attack would take them. Not sure if that is commonplace in the UK.
1 Like
Kellie, please resist double posting, edit your first post using the pencil icon.
My long story appears in the Personal Diary section if youāre interested. Iād guess itās very different from yours because The one constant about mine is I have always been told by everybody that I didnāt have Menieres. Not what I did have but that it wasnāt Menieres. Theyāve all bern convinced of that for some reason. No further explanation ever given. Well, not to me, so No Injections into my middle ear have never been considered. Cannot help you there, sorry. Helen
It used to be. For many years but following recent updated research it seems to have fallen from favour and isnāt generally encouraged. Helen
I had three scary drop attacks and was diagnosed with Tumarkins Syndrome, secondary to my Meniereās Disease. I declined surgery until I found myself on my office floor with no idea how I got here. I had an endolymphatic sac decompression surgery and that completely stopped my Tumarkins.
1 Like