I spent 30 minutes going through your history here on mvertigo and your case reads like a who’s who of vestibular migraine, someone who has had great success with Topamax, a benzo, and lifestyle mods. Why you have completely fallen into the black hole that is the world of Lyme nuttery beggars belief. Was this a result of MAVLisa converting you for weeks on end? Just look at some of your history:
You said one year ago: “Prior to the cruise, I suffered from headaches/migraines. I had one vertigo spell which lasted 3 days and went away in 2008 … I had all the tests MRI, CAT Scan, VEMP, AUDIO, Blood tests etc - all normal.”
And then you began Topamax after you were diagnosed by a migraine specialist.
“It brought me relief to finally find a doctor who knew what I was going through and to hear him say that with the right meds and diet I could go into remission … My ear fullness has pretty much vanished – one week after starting Topamax …Valium worked for me in the beginning too … Prior, to Topamax, most, if not all of my days were spent in bed. The dizziness and disequilibrium was awful.”
Nov/Dec 2012: “Topamax has helped me so much and I hope it continues! … yes I hit the jack pot [with Topa]… it was the first med I tried… it was a long hard road… but in the end it was worth it. … I have A LOT of GOOD days. My life is SO much better. SOMETIMES, I even forget I have MAV! (This is recently). Topamax is wonderful."
“Has anyone here developed IBS as one of their MAV symptoms? In Feb 2012, I constantly had IBS, had all the tests done… everything was normal.”
The above is a textbook vestibular migraine case study! I wonder who in your family has migraine as well. :?:
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It is important to know that using only one antibiotic to treat Lyme disease and it’s coinfections will not work … You need to use multiple abx at a time and for long periods of time based on your symptoms.
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There is so much about this statement that is ill-informed and just plain wrong, not at all backed by evidence-based science and fits right into the realm of pseudoscience, no doubt being pushed by Lyme Literate Line-My-Pockets Physicians at your expense. And all because of another positive Igenex test that is probably as useful as a roll of toilet paper and a distant memory of some flea bites. Time for another reality check:
There is no credible evidence that Lyme disease can be transmitted through air, food, water, or from the bites of mosquitoes, flies, fleas, or lice. A tick must be attached to you, sucking your blood for 24-36 hours before there is any hope of transmission.
The duration of initial antibiotic therapy for Lyme disease has been studied in several situations and does not correlate with any differential in the resolution of these chronic, subjective complaints. Prospective studies of early Lyme disease have failed to find a benefit associated with longer courses of antibiotic therapy.
Four double-blinded randomised controlled trials that show that there is no effect with long term antibiotic use compared with control groups. This is the most rigorous study design available.
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A. Klempner MS, Hu LT, Evans J, et al. Two controlled trials of antibiotic treatment in patients with persistent symptoms and a history of Lyme disease.* N Engl J Med*. 2001;345 (2): 85-92.
B. Krupp LB, Hyman LG, Grimson R, et al. Study and treatment of post Lyme disease (STOP-LD): a randomized double masked clinical trial. Neurology. 2003;60(12):1923-1930.
C. Fallon BA, Keilp JG, Corbera KM, et al. A randomized, placebo-controlled trial of repeated IV antibiotic therapy for Lyme encephalopathy. Neurology. 2008;70(13):992-1003.
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Antibiotic misuse, sometimes called antibiotic abuse or antibiotic overuse, refers to the misuse or overuse of antibiotics, with potentially serious effects on health. It is a contributing factor to the creation of multidrug-resistant bacteria, informally called “super bugs”: relatively harmless bacteria can develop resistance to multiple antibiotics and cause life-threatening infections. This is a MAJOR problem worldwide and this regimen you have been put on by some LLMD is only contributing to the problem and for what?
There are significant risks using antibiotics long term when they are not warranted. This was recently written about in Nature (2011). The lead author Blaser “…permanent changes to our protective flora could have more serious consequences.”
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Topamax is a drug used to control headaches and dizziness.
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Topamax is a drug used for epilepsy and migraine and not to treat “Lyme disease associated headaches”. I suppose you’d call it LAD or LAH? Totally absurd. Klonopin, a benzodiazepene, is also another highly effective drug class for VM. Topamax often takes many months for people to realise its benefits which you have seen from the outset.
And finally from one of your peers here at the forum: http://mvertigo.cloudapp.net/t/a-word-of-warning-about-lyme/7329