Has anyone on here got mav and Meniere’s disease? My Neuro wasn’t certain of the diagnosis of mav but I fiited it very well as I’ve had it since I was a child, suffer for lack of food, poor sleep, weather conditions and over doing things. I’ve never had spinning vertigo only floating, sinking and bouncing or general movement. I’ve never had hearing loss and my hearing test was fine, although twice a yearish I get hearing distortion that lasts half a day or so. It echoes when I talk and sounds so loud like using a megaphone. It gives me sound loss in that ear too and a ringing. My hubby and I have MS and he gets it too. I have it today hence wondering about the menieres and the vertigo isn’t so great at the same time, the noises which are louder are making it worse! I’ve been on Pizotifen for 3 months next Monday and I don’t seem to have had much benefit if any and I am worse atm for helping hubby who has had an ankle op. I have also done almost 4 months on the diet eliminating most things except yogurt and haven’t seen any benmefit other than eating more frequently.Would be interested to hear what you have to say x
one of my very very good and amazing friends suffers from vertigo,bbpv and MS…MS has alot to do with vertigo bppv and actually they go hand in hand…i doubt u have minears as its a very rare and an obvious condition, its main symptoms revolve around spinning vertigo.attacks of vertigo and hearing loss…i suspect you have either MAV or BBPV due to the MS…so no worries it is complexly normal in hearing your symptoms as they are exact of what my friend states all the time… XX actually its amaziing to read someone say the same thing…my friend does extensive VRT and its helping her vertigo amazingly along with the raw food diet and good nutrition XX much love to you