This morning, after a huge “wobble” on the vertigo front, in desperation I searched again for info on MAV and found this site and feel so relieved.
12 months ago I turned over in bed and had a brief spin followed by six weeks of a feeling of disequilibrium. During this time I saw three different GP’s and an Ear, Nose and Throat Specialist who diagnosed BPPV, it seemed text book and when it went after 6 wks I was so relieved and felt I could get on with my life again.
Then just two months later I had a similar feeling which has pretty much lasted ever since with some really good days when I feel 95% but some bad days when I was around 40 - 50%. I don’t get nausea or anything like that and actual ‘spins’ are extremely rare, if at all. I just wake with a feeling of a really bad hangover/feel drunk and it lasts all day with some relief coming in the evening sometimes.
During August - January I saw 3 further ENT’s and had an MRI which came back as all fine. These ENT’s were at a bit of a loss when balance therapy etc didn’t seem to achieve anything and they eventually put it down to anxiety, as I had had a really tough couple of years leading up to the first BPPV episode. However the only thing that was really making me anxious was this.
I kept a diary and about two months ago realised that I always had a bad week in the lead up to my period then I would generally have a good three weeks, with the odd exception. I went to see a new GP as I had recently changed Doctors and she is sure it is MAV and put me on a really low dosage of Propranolol, initially 10mg 3 times a day. The first month around the time of my period I still had the familiar feelings so when I went back for my review I told her this but said I did think it may have been a little better than usual but it was difficult to say for sure, so she upped the dosage to 20mg 3 times a day and the next time my period was due I was ok. I did have the odd weird few seconds when I felt a bit dizzy, maybe in a supermarket or weirdly enough if I entered a public toilet cubicle and had to turn around in a confined space or reverse in then turn but I didn’t have to deal with the 24/7 feeling of just not feeling right. I was so relieved!
Then the last couple of days I have had a cold and last night and this morning used Vicks Sinex nasal spray and this morning I felt soooooo dizzy, really awful, and I got really upset as couldn’t work out why it was bak again as it is not my time of the month either, so in desperation, and convinced they must have my diagnosis wrong again, I stumbled across this forum and one of the first things I read was that nasal sprays can aggravate it! So much of what I have read on here today seems to fit so I am about to embark on a change of diet, regular sleep routine etc etc.
This morning I took a Sumatriptan which I have never used before and I was desperate, and to be honest I’m not sure if it worked or not as I feel a bit spaced out still, 3hours after taking it, and the symptoms are very similar to what I was feeling anyway.
I just wanted to say Hi really, and that I am so grateful to have found so much info and support on here, and whilst I feel sad that my life is going to be so restricted whilst I deal with this I am also full of optimism that I have to try and beat this.