Whilst keeping caffeine to minimal levels (which is doing the trick for me at the moment) as my only diet restriction.
Brain seems to have shining clarity and at times it feels like Iām getting my old mojo back.
Even dealt with a cold no issues.
Onwards everyone!
(Some minor symptoms if Iām really picky mostly my ever present low levels of tinnitus, but all easily ignored)
(For reference Iām almost exactly 3 years in to chronic MAV)
PS sure I expect more relapses but I canāt ignore the massive progress and recovery even without meds having given up Amitriptyline just over 1 year ago.
Now look here. Iāve told you before. āPride cometh before a fallā. But there you go boasting again and right in the middle of me enjoying my morning coffee! Well, it is decaff and I never hv more than one a day and somtimes I donāt have any at all. Itās no hardship. Itās my least favourite drink actually but I had it made for me today and didnāt like to refuse. Helen
Oh, yes, be positive. Thatās the spirit! Thereās always hope. After all, look at me. Fifteen years in come early November, and three years end of this month since I eventually got a āprobableā diagnosis of MAV, and yesterday I went to the dentist without needing two pairs of dark glasses and his horridly strong light had no affect at all! Then today Iāve been around three different shops/small supermarkets all, without dark glasses and came out NOT DIZZY! Before the meds 5 minutes in store, so dizzy I could barely stand and ended up days in bed, and months of living indoors like a mole/vampire in the dark behind closed curtains.
That enough positivity for you? (With fingers crossed behind my back for tomorrow!). Helen
Can I ask how u got off amitriptyline did u get off it slowly? Iv only been on it a couple of months now but I want to try for a baby in a few months so thinking ahead and how to get off it.
Good question. I felt the symptoms had reduced enough to have a go at going down. Once Iād gone down by 10mg and the world hadnāt fallen apart I tried to drop again and I was still ok.
My principle yardstick was if I could still tolerate computer screens. I could so I kept dropping.
These drugs are very powerful and you should not take them if you can get away with it.
I also knew Amitriptyline was not doing anything for my remaining symptoms, imbalance and tinnitus so there was no point in taking it anymore.
It took me 6 more months without meds to get my normal balance back (that I hadnāt had for 2.5 years). Iāve had a couple of scary relapses since then but always bounced back. Now better than at any time in the last 3 years.
Iām not cocky though: a relapse is always possible and I now remain very careful with caffeine intake especially.
one of the issues i have is that i never feel quite 100% and i canāt tell if itās the meds or the symptoms that are making me feel a bit weird even on the best days.
iād like to come off the meds as soon as possible but Dr S has just advised me to ease up my gabapentin dose to āmop upā the last bits of the condition.
iāll probably do what he says as itās less likely to end in disaster - but, that said, iām keen to get off the meds as soon as Iām ābetterā or better enough, anyway!
i know exactly how you feel. I feel my good days are stuck at a ābit weirdā. If you sleep and rise on same time, eat healthy, cardio exercise and be stress free you get patches of near normalcy.
Take your time on the meds, i came off zoloft and had the most horrible 4 months before hoping on Amitriptyline.
