Now look here. I‘ve told you before. ‘Pride cometh before a fall’. But there you go boasting again and right in the middle of me enjoying my morning coffee! Well, it is decaff and I never hv more than one a day and somtimes I don’t have any at all. It’s no hardship. It’s my least favourite drink actually but I had it made for me today and didn’t like to refuse. Helen
Oh, yes, be positive. That’s the spirit! There’s always hope. After all, look at me. Fifteen years in come early November, and three years end of this month since I eventually got a ‘probable’ diagnosis of MAV, and yesterday I went to the dentist without needing two pairs of dark glasses and his horridly strong light had no affect at all! Then today I’ve been around three different shops/small supermarkets all, without dark glasses and came out NOT DIZZY! Before the meds 5 minutes in store, so dizzy I could barely stand and ended up days in bed, and months of living indoors like a mole/vampire in the dark behind closed curtains.
That enough positivity for you? (With fingers crossed behind my back for tomorrow!). Helen
Good question. I felt the symptoms had reduced enough to have a go at going down. Once I’d gone down by 10mg and the world hadn’t fallen apart I tried to drop again and I was still ok.
My principle yardstick was if I could still tolerate computer screens. I could so I kept dropping.
These drugs are very powerful and you should not take them if you can get away with it.
I also knew Amitriptyline was not doing anything for my remaining symptoms, imbalance and tinnitus so there was no point in taking it anymore.
It took me 6 more months without meds to get my normal balance back (that I hadn’t had for 2.5 years). I’ve had a couple of scary relapses since then but always bounced back. Now better than at any time in the last 3 years.
I’m not cocky though: a relapse is always possible and I now remain very careful with caffeine intake especially.