Do people find when you have had a bad night or a late night, the head is banging in the morning and dizziness is a lot worse?
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I can be triggered by a poor night’s sleep
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I’ve noticed that too. Doesn’t take much, waking up at 4AM to let the dog out does it for me! Feel likecrap that entire day.
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Do you find your head feels like it moving internally when just sat or doing something. Feels like head moves side to side and sometimes forward and back.
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The sleep issue is real. My other major frustration is the unpredictable nature of this condition. One day you’re feeling almost normal, next day back to square one. Some days my vision is great,next day it’s blurry! My PT therapist said this will go away eventually, maybe 6-12 weeks. its been about two years now!
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Yes, my severe insomnia feeds into my dizziness. Horrible stuff.
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100%
lack of sleep is probably the biggest trigger for me. Together with a hangover, it was lethal. Thankfully I’m off the alcohol now, but having a temperamental small child who doesn’t like sleeping has been a real challenge. After my recent flare, my husband and I decided in order for me to survive, I have to sleep in the spare room with ear plugs and eye mask and he has to deal with the night time wakings and 5am starts!
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This is awful. I got proper insomnia during the first Covid lockdown and had moments of utter despair with the vertigo it brought on. Hope you feel better soon!
Honestly, I don’t think 99% of professionals get it. This is why I’m so thankful for this forum. I don’t think this ever goes away completely. It’s always under the surface waiting to be triggered and then hangs around for months/ years.
I live in Atlanta, deal with Docs from a Top Tier medical school, and they mostly look at me like I’m nuts when I tell them what I have. If we were dealing with Parkinson’s or cancer,they’d understand as they’re familiar with it. But this isn’t. Just have to deal with it. It does however, really screw up your life.
And those of us that have poor vision due to a cornea problem? Are we going to notice our vision is worse? How the moon looks to a Keratoconus patient.
Is there anything the Docs can do for your corneal problems? My issue isn’t that severe. I’m down to one eye, and several times during the day it’s like a thin screen is pulled down on the good eye. Had a cataract removed years ago which improved vision tremendously but this is a temporary thing. Maybe PPPD,maybe old age.
The only vision symptom I’m aware of that affects clarity and is associated with migraines is neurological in nature and has nothing to do with the cornea. I don’t know what the term for it is, but during some migraines, some patients experience a vignette that starts closing down on their vision until it looks like they are looking through a frosted donut.
If you’re inquiring about doing something with the cornea to eliminate the cone from your Keratoconus, The only choices are to use some type of contact lens to vault over the cone trapping saline solution between the lens and the cornea. This causes the light rays entering the eye to transit the cone area practically unaffected since the density of the saline and the cone are nearly the same.
The other choice is a corneal transplant, which is a drastic step. The doctor removes the donor cornea with a round “cookie cutter” type blade and then removes your cornea with the same blade. They then drop the donor cornea into the space in your eye that was occupied by your previous cornea. They then stitch the new cornea to the new eye using sutures that have to be removed after the cornea grows into your eye.
the cornea transplant option is a difficult option to have done. You have to convince your Ophthalmologist that you need one. They won’t approve a transplant unless your eye is very bad and uncorrectable any other way.
I’m not sure if that answers your question. If not let me know what you don’t understand and I’ll try to clear it up.
Eye Doc tested my good eye at 20/20 sitting in her office. My issue seems to be intermittent cloudiness on that good eye. Essentially comes and goes. I’ll ask her at my next appointment if they’d made ant progress in repairing a detached retina. Don’t think I’ve ever had a migraine.
Is the cloudiness over all your vision, or is it spots that move around?
I’m a little confused. Why are you asking about the retina? I went back over the posts and I don’t see anything about your retina.
Think someone else was asking about the retina. My issue is overall cloudiness and blurry vision in that one eye. Thanks for asking your Doc. It’s very annoying.
If you’ve had it checked out by a qualified optometrist I wouldn’t worry. It’s very likely migraine activity, especially if intermittent. Please make sure you are the checked for all possible eye disease though including glaucoma.
Sorry for the slow reply. Had a daughter in hospital. I have an eye exam scheduled for early December. Usually see her twice a year. The Doc does a thorough job, so you’re probably on target. The gift that keeps on giving!