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'Losing my balance made me lose my confidence'

This lady writes of her experience with vestibular symptoms following a surgical procedure for Neurofibromatosis a rare condition that affects one in 30,000 people. It is not MAV that’s for sure but her subsequent experiences resonated with me to such an extent I just had to post it on here. Proves all manner of conditions can produce the same symptoms and as a person who has totally lost her balance for weeks at a time on quite a few occasions I would be very interested to know how many on here can equate to her symptoms. Helen


Certainly a lot of similarities to what I experience. Just goes to prove that although we all have similar symptoms, the root cause of our difficulties differ greatly, thus making the finding of solutions even more complicated! - and why some things will help one person but not the next. :cry: Thank you for sharing, Helen.