Will do, might make for a long and boring read so I’ll attempt the short version…
1998 - Holiday to Cape Cod, Massachusetts, USA (lyme endemic area), remember a bite there and my Mum confirms big swollen area on back of my leg, but no tick seen
1999 - Was at school and suddenly all the glands on one side of my face and neck swelled dramatically (they thought it was an allergic reaction and was rushed to hospital, lymphoma was even suggested too, they wanted to biopsy), lasted 5/6 days. They weren’t painful and I was eventually diagnosed with glandular fever, it was a v v atypical case though as I had no fever or sore throat (have since discovered that lyme patients usually have high EBV blood levels)
2000- Pulling sensation on one side of my face like extreme muscle tension, lasted 6 months, saw neurologist who diagnosed chronic migraine, tried ami, propranolol and limbitrol with no effect
2000 (2/3 months after face pain had resolved) - sudden onset of visual disturbances inclusive of many many floaters, flickering vision, ‘visual snow’ - lasted 6 months approx
From 2000-2012 - on and off periods of extreme fatigue, panic attacks, always coupled with frontal pressure headaches, pins and needles and buzzing sensations in my hands, feet and shoulder blades, extreme shoulder joint and neck pain, dry stinging eyes, a sense of ‘spaciness’, occasional intense painful headaches, weak feeling limbs and joint pain on and off in my toes and knees.
July 2012 - sudden massive dizzy spell followed by constant 24/7 disequilibrium, panic attacks, derealisation, brain fog, and after 2/3 months all my other symptoms also returned…
I only went for the Lyme tests due to that memory of the bite and the very odd episode of flaring glands shortyly afterwards. I also have had hormonal imbalances, which started in 2000 too and suffer alot of severe acid reflux. Also, every time I have blood tests at the doctors my inflammatory markers are raised (ESR and CRP). I hope you can decide what is best for you Jem. My Igenex results were positive for Igg and Igm antibiodies by both Igenex and New York state (stricter) criteria. I had 5/6 positive bands on each tests (many specific forthe Lyme bacteria). Even so I am unsure what to think…I have such a family history of migraine…any other questions just shout. xx