Becky,
i know one person, who is not actively posting right now who gets a lot of nausea and not nearly as much dizziness as i do. I’ve heard that from other people who are not actively posting. I feel so lucky not to get nauseous. That would just be the icing on the cake, wouldn’t it. Ugh!!!
I never doubted my diagnosis, not at all. Are you a migrainuer by history? Or did you suffer motion sickness as a child? Do you get any aura? Did you have texts of exclusion?
I know some people who believe, truly, that Lyme disease can cause everything under this sun, and every sun in the entire universe. They are convinced that I have Lyme disease even though my preventatives are working for. “But we need to find out what the underlying cause is” meaning, i am only treating symptoms.
In this country there is a great controversy regarding LD. Conventional docs believe you treat it with antibiotics and that’s it, it’s gone. Alternative docs believe in chronic LD, meaning that it can hang out in your system like Epstein Barr virus and cause all kinds of chaos. The problems is the testing. Conventional docs have testing that is pretty black and white - you either have it or you don’t. Alternative docs have these tests that are pretty vague, they show traces of these different bugs and just like the Epstein Barr virus, you can have it, but that doesn’t necessarily mean it makes you sick, right? Thus, the controversy. And for some reason, when somebody gets on the LD bandwagon over here, it becomes a religion for them. you’re either for them or against them. I hope I haven’t offended anybody here, God knows I don’t need to start any more Holy Wars. But when I told these friends of ours that I was diagnosed by the top MAV guy on the planet - why couldn’t they accept his diagnosis? They said, because he is blind to LD and that it was because of the conspiracy against LD by conventional medicine. Then when i told them that I was seeing him by phone consult, they told me that a LD doc was put in jail for treating by phone consult and this furthered their conspiracy theory against LD. When I told them that my entire family gets migraines and dizziness (trying to point out the hereditary effect) they said, how said that my entire family is suffering because conventional medicine refuses to open their eyes to LD. !!! :evil: They have a psychotic daughter and do I have to tell you what they blame it on?
I haven’t spoken to them since - before you know it, I’ll be locked up, either for strangling them or going psychotic myself!
on the other hand, who knows, maybe you do have LD. Maybe I have LD. It can’t hurt to get treated for it, it just costs a lot of money. You get all these tests. You take all these antibiotics and antimicrobials and all these supplements that they sell right out of their offices. If you find relief right away wouldn’t that be great ??? but if you don’t you risk messing yourself up with overdoses of antibiotics.
I should just shut up. If my post ends up starting a Lyme Disease Holy War - I’m outta here!
Julie