Hi all! I’m from the Netherlands.
My dizziness ’ adventure" started in 2013.
One day I noticed the earth was moving. Like being on a boat.
I went to the neuro who did an CT Scan and told me I was hypervigilant to sensations in my body.
I also developed an anxiety disorder (hypochondriac) back then.
Did two full balance-tests in two different hospitals in 2015 a MRI in 2016 and another CT SCAN in 2019.
Fast forward to 2020.
I still have the dizziness, some days (hours) are better than others.
There used to be days were the dizziness is a 2-3 but the last month it mostly is a 8 or a 9.
It seems like my bassline balance has gone up.
I never got an official diagnose but my symptoms (sensations) do seem a lot like you guys have.
Dizziness, bobbing, swaying (also when standing), pulling sensation, weak legs, visual distortions (moving objects etc) and trouble walking (especially inside the house). Overall a drunk feeling.
Also my head feels heavy and I get these weird head pressure like pain. Which is not a real pain like migraine. And this seems to move around my head but always at the back of my head and sometimes on the top. Generally it feels like my head is in a clamp or I have been hit by a truck.
There are days (weeks) I have to support my head when sitting or when working at the computer.
My neck and the back of my head feel very tense. When I stand still I can feel the tension building up in my neck especially when I want to see if I do sway a lot.
I never had any migraine aside from the normal headache which lasts a couple of hours. And no nausea.
Shops and lighting used to be a problem but I can more or less do all the regular stuff.
Driving is okay. It’s my only relief.
Symptoms and sensations vary from day to day.
Today I feel my head wanting to bop back and forth and my neck is superstiff.
And I feel like walking on a trampoline.
This can be gone tommorow and than something else shows up.
But I feel off most of the time like 23,5/7.
In 2016/2017 I had other health issues and then the dizziness didn’t take the center stage.
In a post on this site I read that people say that when switching from one symptom like tinnitus (which I have too) or floaters (which I have too) the focus somewhat switches from the dizziness.
But at the moment it is full-on dizziness. From the time I wake up to when I go to sleep.
I do work a couple of hours a day, I like the distraction. But I feel a bit reluctant to take on extra activities as this wears me down. I never know how I’m feeling later that day.
I have noticed nothing seems to trigger it or make it less. It just comes (and stays) or goes when it wants too. I meditate, walk my dog, sleep for 7 hours a night, take magnesium, cut caffeine, eat healthy food (fruits, vegetables) but nothing seems to help.
My questions for you MAV’ers out there.
Do most of you had a migraine attack prior to your dizziness? I never had any.
Does your dizziness come and go? Or is it there 24/7?
Do you have neck/back of the head issues as well?
Does your bassline go up and down over the course of weeks, months, years?