I am not new to MAV - I have had it on and off for 18 months, yet since January have become chronic. I suffer with feelings of imbalance, neck pain, head pressure and pain on the right hand side, sometimes ‘breathing’ walls and floor and the worst, derealization and brain fog…
I trialled Nort at a very low dose but due to the effect it had on my mood - very low, suicidal ideation - I was taken off of it. I had a telephone consult with Dr. Surenthrien on Monday and he has diagnosed me with MAV - a massive relief in one way - and started me on Pizotifen.
How long did this med take to work for those it worked for? It is hard to gaugue what percentage I am operating at - I would say 50% - I can drive and I can walk but I am stuck in my head, terrified this wont go, some foods are triggers for me I think, but it is all a bit of a mess!
I have gone the holisitc route in the first instance and am waiting for a stool test and a Dutch test to come back to see what is going on underneath. I started a candida cleanse but my symptoms became so intense that I could not hack it any longer.
I am desperate to hear the positives, so far Pitz makes me groggy in the morning and I have had an increase in headache activity - did anyone else find this? I have been reading positive stories every day, started VRT, diet changes etc. I think I am worried mostly cause my attacks were only ever 10-15 days with symptoms in between that I could mostly ignore. 4 months and counting now.