I am convinced that my whole MAV experience has been brought about by my move through peri-menopause and into menopause…but I am at a loss on how to take this any further with the medical profession. The two GPs I see (one male, one female) are both very willing to see me and never make me feel as though I am wasting their time, but have very basic knowledge of migraine and even less of MAV. (I pressed them for a referral to the National Neurological Hospital in Queen Square London to the neurotology clinic in 2007 because they had given up trying to help my dizziness etc etc. It was the hospital who diagnosed MAV).
Since 2007 generally things have got better but still with weeks of not feeling good. My periods had stopped in November 08 and I assumed that I had finally (after 7 years - I’m 49)) reached the menopause. And then, about 3 weeks ago, I started to feel pre-menstrual with all the symptoms of an approaching period. Sure enough one came. I have now been referred to see a gynae because women shouldn’t bleed after a year. Sigh. More prodding and poking…Anyway, it can be no co-incidence that with the arrival of the period I have had a decline - severe decline - in my MAV control. Today I actually had the first visual “reverse zoom dolly” effect for two years and my whole right side feels off kilter, foggy and blocked. I have also had some hideous cold type virus and did think that this may have kicked off the new symptoms but am not convinced. And then I have had a headache that lasted two days - sitting in the back of my head/shoulders or right across the top of my head. Before that I had two days of a pain in the right eye socket…not migrainous exactly in that it didn’t thump…but would not shift. Again, this seems all very familiar to how my initial MAV symptoms started in 2007. Singing tinnitus too in both ears…mild but definitely there.
So my question is…how do I find some help with exploring the hormone thing and the migraine/MAV? Who do I speak to? I’ve exhausted the GPs - they just suggest blood tests which always show that I am “convincingly menopausal” . They have, of course, suggested (regularly) using HRT but I am not convinced that this is going to help. How do they know that I am not oestrogen dominant and would benefit from progesterone? The NHS does not prescribe progesterone as a rule so that would mean going private.
Anybody any similar experiences, thoughts or suggestions??