What are your thoughts? Is this Migrane Associated Vertigo (MAV) or Meniere’s disease? I am still running through tests, assessments with doctors, ENT Specialist and Neurologist - no diagnosis as yet - hopefuly soon.
Since 2007 1-2 times every couple of months experianced bright spots in my vision (moving), with loud ringing in ears and severe dizziness - lasts for 30 secs then goes. Unsteady for a couple of minutes and then fine. My spouse has complained my hearing has been getting worse the past year.
On 11/11/2013 (Rememberance Day of all days), I woke and could barely sit up I was so dizzy (spinning), lasted for half hour then felt unsteady. Fell over in car park as I was walking along - no reason why - injured my wrist and knee. Was dizzy all day and fatigued. As the week wore on, I had daily dizziness (spinning), or if not spinning lightheaded and unsteady and, on occasion, nausea and very fatigued - often have to lay down for 2hrs or so after a dizzy spell. Ringing in both ears (cicadas) which varies in intensity is always present. I find myself on occasion leaning in or asking for someone to repeat what they just said. Also both feet have been tingling non stop since this started. Have had what feels like a reverse squeeze (diving term) in my ears on occasion. Also have a real brain fog - to the extent of not recalling names of people I have worked with for five years. I currently can’t drive and often need assistance to walk when unsteady or dizzy. Since all this started on Rememberance Day I have had no visual auras or headaches.
I have never suffered motion sickness, I have only had a few headaches in my life (years ago). My sister and son suffer from migranes. My mother had tinnitus (hearing aids for 20yrs or so) and vertigo and nausea before going totally deaf over a period of 20yrs (was diagnosed with BPPV).
As I have no idea of what I will be like in the afternoon, or the next morning, I can’t agree to meet someone or state that I will do something as if I am to dizzy, unsteady and nauseous I am unable to. I am very wary of going out by myself in case I fall over. I have the same concerns about travelling interstate or internationally as I know I will likely be non functional for lengthy periods, or even agreeing to have a teleconference or a meeting I need to be at to make decisions as I cannot guarantee I will be there, or if I am there I may have to excuse myself. As a passenger in a car I can often barely tolerate the motion.
Went to hospital - CT scan all good as was blood tests - nystagmus was present. Discharged with some tablets - had those for 3 weeks no difference. Saw doctor who thought Menieres - more blood tests, blood pressure tests - all good. Referred to ENT who after audiology and ENG and assessment thinks maybe MAV and should see Neurologist. ENT said it is not BPPV, ENG was fine (I did not get dizzy at all when laying there with the water torture treatment) and audiogram shows mild to moderate high frequency hearing loss with some minor low level hearing loss.
Saw my Doctor today who referred me to Neurologist, then ENT called this afternoon and says they forgot to tell me they want to do an MRI which I will get done.
Given the above symptoms - what do you think MAV or Meniere’s and why?
Staying chin up