MAV or...?

Alright the best way to describe this is a pounding in my left ear only slight dizziness which Meclinzine has been able to take away. I’ve had this for 5 months now nothing in my ear can be seen I’ve been on Imitrix and Maxalt-MLT neither of which has been helpful. Its starting to get worse in the way of hard to concentrate, loss of interest, weakness, hard to sleep and some others. Some days its fine I can barely tell its going on and other days its OMG I can’t move I stay in bed and don’t do anything. Better way to discribe is I hear my pulse in my ear. I’ve tried every pain medication I can think of and also was Naproxen and Oxycodine with no help but to make me sleepy sometimes. I’m 25 years old and I wonder if perhaps I’m not telling the doctors the right thing. Need some help here.

Be patient, KA - the board is a busy one but I promise someone will respond. I’ll keep bumping it up.

Folks - I’m introducing my daughter-in-law. Just recently married my son in August, who deployed to Afghanistan in November.

Trying to get her ear/head issue settled before he comes back.

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Alright the best way to describe this is a pounding in my left ear only slight dizziness which Meclinzine has been able to take away. I’ve had this for 5 months now nothing in my ear can be seen I’ve been on Imitrix and Maxalt-MLT neither of which has been helpful. Its starting to get worse in the way of hard to concentrate, loss of interest, weakness, hard to sleep and some others. Some days its fine I can barely tell its going on and other days its OMG I can’t move I stay in bed and don’t do anything. Better way to discribe is I hear my pulse in my ear. I’ve tried every pain medication I can think of and also was Naproxen and Oxycodine with no help but to make me sleepy sometimes. I’m 25 years old and I wonder if perhaps I’m not telling the doctors the right thing. Need some help here.

— End quote

I am not sure if what you have is also what I experience …mine is more like what I would call a pulsating sensation in the ear, yes it may sound like a pulse but mine is not in rhythm with my pulse.( if that makes any sense) I only started to have this about six months into this illness I had it for about six months and then it just went away only to return about six months later. So far none of my doctors have been able to really tell me what is causing it. I take a small dose of valium and that helps me deal with it and other issues with this illness.

Try taking you finger and rubbing it behind your ear for a few minutes and see if that helps it diminish or go away for periods of time…it does mine , not a cure but it helps.

Tell the doctors you are having a pulsation in your ear…

Below are some links see if any of these seem to explain what is going on with you.

tinnitus-audiology.com/articles/pulse.htm

otohns.net/default.asp?id=14642

dizziness-and-balance.com/di … nnitus.htm

Let us know if you find a doctor that can tell you what the cause of this condition may be.

I will I’m having an MRI on tuesday and then I’m going to a EMT on the 28th thank god for the military benefits otherwise this would be near impossible. I’m going to do everything I can to update this as much as possible. Recent development is that its getting louder and pain is in more of my head. I’m dizzy and I’ve gotten sick a couple of times. Thankfully I have Meclizine which has taken away the dizziness and sickness. Blood tests were done so I’m not just pregnant.

I’ve had it rarely, but the drumming in my ear (left side only) would come in brief episodes that started at a slow rate of “beating” that got faster and faster, then stopped. This is the same ear that I’ve had occasional fullness in, too.

But it sounds like you’re having migraine headaches too - isn’t that what the Imitrix and Maxalt are for? Anyway, the MRI is the right thing to do, so it’s good that you’re getting that done. If it comes back fine - as is most often the case - then you may be a migraineur who would benefit from a preventive treatment approach. In the meantime, I looked at some of the links Timeless provided, and they’re very interesting - hope you’re checking them out too!

Take care - hang in there! Some of us have our own built-in marching bands with just percussion sections, whether we want them or not - I hope you’ll have some answers and some relief SOON.

MRI was clear. As for everything else not having the pain just the “drumming” in the ear. Was told by the ENT that its a possible malfunction in the blood vessels that I’m hearing the blood moving in that area. That there is NOTHING to fix it, solve it, etc.

Hi there

I know I’ve only ever spoken about my dizziness on this board but back in 2007 I too experienced a pulsating sound in my left ear (I say pulsating but mine absolutely screamed and wailed at first. It was deafening). To cut a very long story short I was diagnosed with an ‘AVF’ or Arterio Venous Fistula. An MRI came up clear. I then had a cerebral angiogram which found the AVF. In layman’s terms it is a faulty connection between an artery and a vein. Basically the blood flows up the artery to the organ (the brain in this case) at very high pressure. It then leaves the organ at low pressure in the vein. An AVF occurs when the the blood flows directly from the artery into the vein without going through the organ first. The whooshing sound you can hear is your blood flow pulsing in time with your heart beat.

The good news is that it my case the problem resolved on it’s own. It started to go quieter and quieter and eventually stopped, probably over a period of 6 - 8 months (I forget exactly). But I must add that there IS a solution. The doctor who did my angiogram was a specialist radiographer (Dr Anoop Madan - an awesome man). He said that they can, through another angiogram, insert a coil (some metal, I forget which) at the site of the problem to block the fistula. It has its risks but has been successful.

You probably need to see a neurologist to discuss the alternatives, if in fact this may be what you have! I hope this helps you in your investigation.

Jen