Hi, me again. As I stated elsewhere Amitriptyline or a beta-blocker (Propranolol) are well established to control photophobia and help with visual issues. More recently Effexor (Venlafaxine) is being used particularly it seems in the US. Visual issues are just symptoms of hypersensitivity like ‘head pressure’, there’s nothing wrong with her eyes per se. To understand photophobia better you could search Kathleen Digre on the internet, top US, probably world, authority on the subject. You will find some references to her on here using the Search facility too, and I’ve written a piece in my own Personal Diary about photophobia which will come up in same search. Another good source I found was the Theraspecs website and also any of the sites for the Visually Impaired. Good management tips on those which will be useful until she recovers. Things like pausing to give eyes adjustment time when moving between rooms which generally means adjusting to different light levels. You can PM me if you prefer. I had so much trouble myself, I’ve become quite knowledgeable about photophobia.
When it comes to reacting in grocery stores, it isn’t just the lights. Rather overall excessive visual stimulation. Just walking between two grocery laden isles - no really obvious focal point - will cause visual vertigo. In fact anywhere where whatever us in your peripheral vision is the same on both sides will do it. Travelling by car’s the same, hedges both sides can be a killer.
Good luck to her with the tinted glasses. They help many people. Only trouble is at what point do you/does she, and I mean do people with chronic symptoms rather than just in store, take them off.
With regards to changing her lights at home, I wouldn’t do too much too soon because once medicated her condition will change/improve and you may find you have gone to much unnecessary expense. If she’s always lived with fluorescents, her brain ‘underneath’ is used to them. Mine is. For the time being ensure it’s safe underfoot, mats that cannot slip etc and just try to ensure she is in consistently even light - an impossible ask in an ordinary home I know - been there - but as near as possible. She may find it impossible to see in low light or in the dark. Watch out with torches, spot lights etc. Blue lights can be a problem, think PC and phone screens. Those modern LEDs I cannot take.
Hard work but don’t worry, it won’t be ‘for ever’. It will gradually reduce. Good Luck. Helen