I was recently diagnosed with MdDS along with the migraine associated vertigo diagnosis I received almost 2 years ago. I’m having a hard time with this diagnosis, but maybe I’m just in denial. I did a search and read some of the older posts about MdDS, but I’m still wondering people’s thoughts on this. Can I have migraine and also have MdDS, or is it more likely that my migraine is displaying MdDS like symptoms? Maybe it doesn’t really matter, it just feels daunting to me to have one more thing to worry about controlling. (I have also noticed on a different group that my neurologist has recently dx 3-4 other people with MdDS and migraine… Hmmm).
My new symptoms started in March after being off meds for 5 months and not being great with my diet (was having coffee daily, eating a lot of papaya without realizing its full of tyramine, and a few other no-nos… So dumb of me, but I did learn a lot in the process). I was doing really well until March. I did go to Disneyworld in late January and picked up the flu while there, so that could have gotten me off track too.
-a lifty feeling when I walk (It almost feels like when you hit turbulence on a plane or maybe that trampoline floor feeling people talk about). These are brief and don’t happen 24/7.
-When I walk up the stairs my legs feel really heavy and I have a pulling sensation in my body. Again this isn’t 24/7. It usually happens later in the day when I’m a little more tired.
-After I drive in the car or go for a boat ride I feel a little more off balance and rocky, but it clears up a bit after a few minutes. I have zero symptoms in the car or while on a boat.
-Vacuuming or sweeping my floor would start to make the floors feel like they were going up and down, but that has improved a lot.
-On and off ear fullness- more of wet ear feel in my right ear
I have cleaned up my diet back to following HYH and started nortriptyline 6 weeks ago. I’m up to 30mg. These symptoms have stopped:
-I no longer have a ping-pongy feeling in my head
-Screen tolerance has improved a lot