Does anyone take Meclizine, when the dizzys hit? Does it help control the rocking sensation? Or does anything else?
I had been feeling somewhat better, and am going back to work on the first, so of course I am having a big time relapse of the rocking, disequilibrium sensation. Lasts all damn day. Find myself taking a lot more Valium, like in the beginning. Not spinning, but still rocking away & had a hard time taking my walk this AM.
I did stop the STJ and 5htp, as I wanted to give CoQ10 and B2 a fair run for their money. Hadnât used the STJ for long, only a few days, but there are too many warnings of interactions with 5htp that even tho I was taking only 2/3 of the recommended dosage of SJW I felt that was pushing it. I felt great last week on Monday and Tuesday. By Wednesday I was crashing. Tuesday is when I took SJW for the first time so I think that may be a little sign?? Too much for my brain with the 2 supplements? However I did have coffee Tues and Wed and not the right diet, and didnât eat enough but would that set me off for 5 or 6 days??? Seems too long does that happen to any of you??
Am not having much anxiety that is a good thing! Still taking the butterbur/feverfew neuro recommended.
I have tried Nori, was way too tired even to get up in the AM. Have now given Inderal 2 tries; both gave up on second day as I cannot function. Low dose too, 5 mg this last time. And Topamax made me beyond stupid, increased phonophobia and caused me to become disoriented. Oh and the shortness of breath too that was a scary drug for me.
Feeling super super sad just nowâŚgot any advice?
Thanks you all are my lifeline right nowâŚno insurance, no doctor, no hubby/partner⌠The cat still loves me. = )
Aw Kathleen I really feel for you, I know how bad it is when you relapse and its so scary. I am going through it right now. I am so sorry you donât have anyone to support you. I donât think I couldâve got through any of this without my partner and my mum. It is such a scary thing. Do you think it could be anxiety about going back to work that has made things worse? Are there any other meds you can try for MAV? pizotifen, amitriptyline, gabapentin, lyrica, flunarizine? I am sure there must be others as well. I am not sure what is available in the USA⌠I really hope it is just a blip for you and things improve soon x
So sorry youâre feeling so rough Kathleen, particularly without support. It must be very, very hard on you, I just wanted to say that when I took SJW a few years ago it made me ever so dizzy, on top of my usual dizziness. I nearly mentioned it when I read a litle while ago that you were about it take it but as everyone is so different I didnât want to say anything that might put you off. Sorry I canât help with the meds, but hope youâll find the right one to help you turn a corner soon. Felling so helpless is just the worst thingâŚ
I am trying to contact our local Health Cntr now, to get an appointment. I donât think they will know a lot about MAV, but I have this forum thank god & am going to try asking for ami.
Its not expensive here & lots of people have good luck with it.
Hopefully this will get me started getting well this is just horrible to deal with as you know!!
Hi Kathleen,
Sorry youâre feeling so rough and alone
The only thing I can speak to is the Meclizine. It was one of the 1st meds I used when this all started last Nov when it was still thought I had an inner ear infection (and maybe at the time it wasâŚwho knows). Anyway, yes, it did help some, it got me through some holiday functions with family (a dinner and a day spent outdoors) but I was taking it like candy. Itâs sold OTC as Bonine and Non-Drowsie Dramamine.
Might be worth a try. Wouldnât cost much and you could pick it up at a drug store.
Judy
I am so sorry your going through this! Is there anyway you could give Nori a shot again? I took it for 18 months and it worked wonders. It did make me tired in the beginning, but it did pass. I started at 10mg and would take it late afternoon so I wasnât too tired in the morning. Eventually it caused insomnia and I had to take it in the morning. If tiredness was your only complaint I may try it again??
Darrenâs got a pointâŚIâm guessing youâre grasping at straws and if Iâm remembering some previous posts you might be in between insurance right nowâŚso Iâm just giving you my 2 cents worth. Please remember Iâm very new to this. Iâll throw another 2 cents out there as my acupuncturist suggested this some time agoâŚwhat about those seasick bans?
Just something to think about, certainly not claiming I know what Iâm talking about,
Judy
Thanks for everyoneâs input. I really appreciate it.
I am thinking of giving the Nori another try, and sticking to 10 mg a night. And also have thought about taking it early too to help stave off that AM tiredness.
Iâll talk to doc about Nori and Ami and see what he/she recommends. I have to go to a local clinic & they wonât see me until next week.
I do recall that I was coming off prozac at the time I took nori (first GP wasnât very interested with me, had no patience for the the patient!) so it could be a viable option.
I think Nori has less SEâs than Ami??? Guess it depends on the person.
Anyway, will make a trip to the drugstore tomorrow, look at those band thingys if they have them! And ask the pharmacist about Meclizine. I just need a temporary fix on the dizzys, to get me thru the next week or two.
Hi Kathleen,
Hoping you get caring advice from your clinic and the nortriptyline or ami helps. The nori did make me tired early on but got through that. The anti-nausea bands are called âSea Bandsâ here in Oz. Do you have any Valium or other benzo to take? Iâve found Ativan helps with the balance issues.
Barb
I have Valium and Xanax, but the Valium seems to have stopped working for the dizzys as it is wont to do, so am setting that aside, will try the Xanax today.
Last night I took a benadryl, which made me dizzier at first, then slept like a log, and woke up this AM canât really tell if Iâm better or not!! Still feel off balance. Too early, I am always a bit slow in the morning!
I have also now had a flare up of bursitis in my left shoulder. Ugh. Only last night took my first Advil, am hoping that pain killers donât give you a dizzy relapse like they do a headache relapse because this baby is killing me!
When I first got knocked down by this shit, they gave me a double dose of meclizine in the hospital. It gave me an amazing case of the twitchies (restless leg plus plus). Otherwise, no harm. I did take meclizine, normal OTC dose, for a while, no harm, some benefit.
Kathleen,
SJW is a very potent serotonin antagonistâŚand 5htp is as well. If you arenât going to try a prescription, these supplements can be pretty good for some. I think by quitting them, you dropped out on your serotonin levels and your brain isnât happy about it.
THe feverfew, b2 etc donât affect sero.
Serotonin is one of the biggest factors in migraine, which is why the antidepressants work well, as the abortives work well for traditional âmigraineâ headaches.
I would sugget if you were getting better on the sjw, and/or5htp, sero might be the key for you.
Either get back on them, or try an SSRI like celexa and see if that helps you.
BTW, I take 100mg 5htp nightly and am on a pretty healthy dose of cymbalta, which increases sero as wellâŚnever had a problem.
Kelley
ps
In answer to your question, meclazine was the first med I tried, and it just made me tired. However, promethazine works great as part of my cocktail, and they are similar. IF you look promethazine (phenergan) up, it says for nausea, vertigo, anxiety and insomniaâŚ
I had kind of been wondering the same thingâŚabout SJW and 5htpâŚmaybe SJW I started too much too soon??? I used to take just 100mg of 5htp at night, and even with an SSRI i donât think it was bad.
Just now I am going to wait; a miracle of sorts has happened & I will actually be able to talk to my kaiser doc, even tho my membership wont be active again until the 1st, and so i will be able to ask her about the next preventative which I think will be a revisit to nori or a shot at amiâŚoriginal GP was not very impressed with my illness or getting me better, just getting me off his back. He should have told me how long it takes to get over SEâs on these meds, etc. and not let me stop so quickly. Or change drugs without tapering off the first one!!
So I will see what doc says. In the meantime I donât think 5htp is a bad thing for me to take so will probably start again.
The first time I had actual spinning vertigo, meclizine helped. The next time, meclizine didnât. And last fall, after my head had settled into a perpetual fog of ânot rightâ (visual vertigo), I tried meclizine again and it made the vertigo worse. Youâll know pretty quickly with meclizine if it helps - unlike all the migraine meds (SSRIs, anticonvulsants, etc.) that you have to take for weeks on end, fiddling with dosages up and down, before you have any idea if theyâll help. If youâre desperate, Iâd say itâs at least worth a try - just in case.
Just wanted to let you know I am thinking of you and I am so sorry to hear that you arent doing so well. Did u ever try the meclizine? It never did help for me. Was one of the first rx I was given. The doc was stumped when I told him it had no effect and it made me exhausted. But if you havent, try it, its worth a shot. I never did have the true spinning vertigo. Just the disequilibrium and rocking.
I truly hope u find a new migraine preventative that works for you. Maybe a combo? Have anything in mind? You are in my thoughts. I truly believe you will find the right med! Topamax has helped me ever so slightlyâŚbut it took such a very long time. I hope it continues. Wishing u the best! Xxxx
Too much for my brain with the 2 supplements? However I did have coffee Tues and Wed and not the right diet, and didnât eat enough but would that set me off for 5 or 6 days??? Seems too long does that happen to any of you??